Logo for MeetAnOstoMate
Support | Friendship | Relationships
27,282 members

Anyone dealing with Adhesions that need surgery??

Thu Apr 01, 2021 6:57 pm
"This is the best website for people with an Ostomy, hands down. So much understanding. Everyone should join."

Hello all

long story short, I had emergency surgery for ruptured colon about a year ago. I lost a foot of my colon and woke up with a Colostomy for 3 months. I had reversal surgery at the end of June 2020 and have had problems since. The reversal surgery was to take 1.5 hours and it took closer to 4 due to adhesions. I have been hospitalized 5 or 6 tiems since reversal and am currently facing surgery for adhesions.

After my reversal surgery I developed C Diff and struggled with that for 6 months and eventually had Fecal Transfer that cured my C diff. I have had suspected IBS for the last 4 months and have bounced around from GI to hospital ER/admissions and recently got a 2nd opinion and was advised I needed to have my suspected adhesions surgically addressed.

Has anyone had this surgery? Was it Laproscopic or open, outpatient vs inpatient? I have been advised there is a possibility of having an Ostomy again. I am fine with it as I adjusted well with the help of my wife. I have been so desperate that I have considered permanent ostomy if it will make me feel "normal".

Any advice or experiences are appreciated!! Stay safe and be healthy

Clint

Thu Apr 01, 2021 10:10 pm

Hi Clint, I have not had any problems like you mentioned, but I am sure you will get some feed back. I noticed you posted at two different times. Sometimes with people from all over and diferent time zones may take a little time to get a responce. Hope you get things setteled soon. Best wishes and stay safe.

MeetAnOstoMate - 27,282 members
Fri Apr 02, 2021 4:41 am
lovely wrote:

Hi Clint, I have not had any problems like you mentioned, but I am sure you will get some feed back. I noticed you posted at two different times. Sometimes with people from all over and diferent time zones may take a little time to get a responce. Hope you get things setteled soon. Best wishes and stay safe.


THanks Lovely, I always appreciated any info!  I realized too late the double post, I could not find the first so I reposted in another section, sorry for the double!  Be safe and stay healthy

clint

Fri Apr 02, 2021 9:19 am

Hi Footie i have crohns and with that is inflamation and scar tissue, i had resection surgery 3yrs. ago after having an ostomy for 30 some years. The surgeon tryed to do laparscopic this time but i had too much adhesions so it was fully open sugery and what should have been a couple hour surgery was almost five but i,m glad it was done as i like you was in and out of the hos. with blockages and on pain meds which i dont like. good luck

Fri Apr 02, 2021 9:46 am

I haven't had such an experience. I just wanted to wish you well.

Mike from Lakewood, Ohio, a suburb of Cleveland.


Fri Apr 02, 2021 11:11 am

Hi Footie ,  adhesions as you know are scar tissue and every time they open you up you get more. Like trimming a branch , everyplace you cut will have five , 6 new ones.  One time the surgeon had me opened up so decided to cut out all scar tissue possible . It was agony for weeks but seemed to work.  Last year the Surgeon wanted to remove my rectum , etc and sew it up. They opened me up without doing scans . After they got a look in there they closed me up again. The scar tissue had covered every organ like a blanket of " vines"  intertwined  and impossible to work around  .  No more surgery for me !!  A good cleanup of your scar tissue might work if you don't  expect surgery in the future  .

All the best 

Magoo 

Mon Feb 14, 2022 6:53 pm

Hey Footsie, I am comtemplating reversal, but will have to research a whole lot more and feel a whole lot better.  I was on pain medicine, I was in the emergency several times and all they did was give me stronger meds than morphine and send me home with Norco and Percecet.  No scans or x-rays, etc. were taken.  I got sick with a lot of pain 11 days after my first Covid shot.  I didn't know if that was the cause of my horrific pain or if it was my back.  Long story short, I had emergency surgery and guess the pain meds blew two holes in my intestines.  If that wasn't bad enough, the surgeon didn't pay attention to family members telling him I was on Prednisone for my PMR (Poly Malgia Rheumatica) and didn't give me any so a few days later they had to open me again as all heck broke loose and they had to clean me up.  It was then they did a colostomy.  I almost died.  I had small brain seizures and caught pneumonia.  As soon as they took me off of the four antibiotics, the seizures stopped.  That's another thing people need to be aware of is certain antibiotics you get after surgery do cause brain seizures.  They're usually small and once taken off the antibiotics they stop.  Thank God.  So you can see why while I want to be able to have a normal bowl movementbut  I hesitate to get the reversal.  All I can suggest is research everything, doctors, the subject matter, get nurses opinions, etc.  And most of all PRAY.  HE will give you guidance.  God Bless You and I will keep you in my prayers.  Believe it or not, better days are ahead.

Mon Feb 14, 2022 7:10 pm


Schwebs9 wrote:

Hey Footsie, I am comtemplating reversal, but will have to research a whole lot more and feel a whole lot better.  I was on pain medicine, I was in the emergency several times and all they did was...

be carefull, slowdown


Tue Feb 15, 2022 4:10 am

All that pain and No Scans !!!  That's not cool !!!  Pain can be from a twisted bowel  but if you had that you would know it by now. I got that for years from scar tissue , like a Fist gripping and twisting my insides.  Think long and hard about reversal ,  an informed patient is a living patient !!

☘💚

Tue Feb 15, 2022 7:35 am

That is nuts that you were in the ER and they did no scans, just increased pain meds.  I am nearly a year out from the adhesion surgery and overall I am improved.  I recommend doing a lot of research on reversal.  Especially if you have PMR and have been on steroids long term.  Good luck to everyone with their health!!

Clint

* Please, do not post contact information, personal information or advertising.
All times are GMT - 5 Hours