Ok, so my battle with red weepy skin continues. UGH! Make that double UGH! Despite trying many things.....that each seemed to work for a bit......I'm back to square one with this crap. I'm going to call my local, pretty useless, Dermatologist.......cuz I'm running out of options and I like to see that "I don't have a friggin' clue" look on her face.....makes me feel 'special'. I've also talked to 3 ostomy nurses who all ended up throwing their hands up in the air.......bless their hearts. Lucky for me my barrier ring by itself does a good job of keeping my stoma sealed to my bag, because the bandage portion of the barrier isn't doing a thing. It's too busy trying not to drown in weepy skin. Now before you start throwing suggestions at me.......let me give you a little more info.........and the reason for this is I'm hoping someone reading this says "yup, that's the same crap I had to deal with and I know how to fix it".
Things seem to work for a few weeks or a month or two, and then they go to shit. For no obvious reason.....noting changes on my end. The anti-fungal seemed to be my hero for a spell...and then the red and weepy came back. The Marathon skin protectant seemed to work, but the skin under it wasn't really healing......just sort of being covered by it. The Betamethasone certainly works. But it's destroying the outer layers of my skin permanently......and I don't want to get to point where nothing sticks to me because I've turned my skin into a non-porous film instead of skin. I see my skin is already showing the tell-tale sheen that's a sign of that happening already......so I put the Beta at the back of the pile unless I absolutely need it and have no other choice. The great 3M Micropore tape I've been using lately still works, but I'm seeing redness under it when I take it off. That might be left over from what the Calamine did to my skin, so I'm not sure if the 3M tape needs to go yet or not. I'm thinking not......but we'll see. What I haven't tried yet is a full colloidal sheet protectant......which I'll be on the phone ordering by the time you read this. I did find a pretty basic guide to treating stomal skin that I'll attach below for those of you who aren't as far gone as me. Maybe it will help someone.
Ok, back to my sorry ass.......errrrr......skin. Below is a short list of what I've tried (and I'm probably leaving out a few). These all worked for a bit, and then stopped working. So bear that in mind. I'd post pics, but they're so ugly I can't bear to look at them myself........so I'll spare you from losing your breakfast all over yourself. Your welcome. The obvious thing I haven't tried (and hold your "duh!" comment until the end) are other brands of ostomy barriers........I just use Hollister. I know....if it's an allergic reaction, you idiot, just change brands........well.........maybe. I'd agree with you except for the fact that I don't get the red weepy skin everywhere the barrier bandage portion is located. Right now the whole f^&king area under the barrier is red, but that's from the calamine I've been using the past couple days......usually only isolated portions of that skin get red and weepy. So if I'm alergic to the bandage material, how do you explain only some sections of skin under it getting red and weepy. But I hear ya.......what do I have to lose by trying other brands....and I'm on it!
Ok, here's all the crap I have piled on the counter that is about to head to the round file.........
Stoma Powder and wipes
Cold and pure Aloe compress
Honey (don't laugh...it's great for cuts)
Topical Steroids (Betamethasone particularly)
Skin protectant (Marathon)
Calamine lotion (my most recent solution....but it made it worse)
Ivarest (basically expensive Calamine)
Triple antibiotic ointment
Tacrolimus (another steroid)
Before I forget.......here's the link I talked about;
All right..........let me know if anyting I just said jumps out at ya......or rings a bell. Or just say 'hi'.......this is supposed to be a really friendly site!!