I have an ileostomy, so leaking is going to happen at times from the stoma shrinking to its final size. I've completely changed my two-part bag three times in the span of 4 days due to it leaking. It's not leaking outside the bag, only where the body sticker plate that is cut around my stoma to the perfect size. It's just next to and around the stoma inside the bag. When it was time to change it, my skin under that adhesive was so badly burned. A red ring was made right around the stoma, and it was extremely painful to get that treated. Now the first two changes were by a nurse. They didn't do anything wrong, it's just that my stoma seems to be shrinking in days rather than the prediction of weekly. I was told I'd need to resize once a week because the surgery makes the stoma swollen, and that swelling will slowly go away. Now, of course, my body is different. I'm a very small person, 123 lbs, 5'6", and I wear a small in every clothing department. I'm also very young, so my body heals faster, I guess. I'm only barely a week in after waking from the surgery. I don't know how well I can stand this if it becomes a daily thing. It hurts, it's exhausting, and I want to be able to sleep without waking up in extreme itching and pain.
My question is, does anyone else have this issue, and how did you deal with the constant chemical/enzyme burns, leaks, and pain? Is there something I can do to prevent more leaking? Is there something I'm doing wrong? Should I go to the ER or Urgent Care?
I do have an appointment today with a nurse for supplies. I might be able to get some advice there too, but it's not the hospital I got that surgery at, so I don't know if I trust anyone else but my own surgeon and fellow ostomates with this issue.