I have an Ileostomy so leaking is gonna happen at times from the stoma shrinking to its final size. I've completely changed my two part bag three times in the span of 4 days due to it leaking. It's not leaking outside the bag, only where the body sticker plate that is cut around my stoma to the perfect size. It's just next to and around the stoma inside the bag. When it was time to change it, my skin under that adhesive was so badly burned. A red ring was made right around the stoma and it was extremely painful to get that treated. Now the first two changes were by a nurse. They didn't do anything wrong, it's just that my stoma seems to be shrinking in days rather then the prediction of weekly. I was told I'd need to resize once a week because the surgery makes the stoma swollen and that swelling will slowly go away. Now of course, my body is different. I'm a very small person. 123 lbs 5'6" and I wear a small in every clothing department. I'm also very young so my body heals faster I guess. I'm only barely a week in after waking from the surgery. I don't how well I can stand this if it becomes a dayly thing. It hurts, it's exhausting, and I want to be able to sleep without waking up in extreme iching and pain.
My question is, does anyone else have this issue and how did you deal with the constant chemical/enzyme burns, leaks and pain? Is there something I can do to prevent more leaking? Is there something I'm doing wrong? Should I go to the ER or Urgent Care?
I do have an appointment today with a nurse for supplies, I might be able to get some advice there too but it's not the hospital I got that surgery at so I don't know if I trust anyone else but my own surgeon and fellow Ostos with this issue.