I have a rectal vaginal fistula due to radiation for rectal cancer. I have a colostomy and a whopping paraostomal hernia. Regarding rectal drainage, I experienced all this 14 years ago. During that time, I had no sexual activity. I am now interested. I have been having orgasms, but I am concerned the rectal drainage has really increased. Is this related to each other? I am quite concerned.
Barbarajo
Jan 08, 2023 7:22 pm
Bill
Jan 11, 2023 7:36 am
Hello Barbarajo.
I am disappointed that nobody seems to have replied to your post, so have decided to give it a go myself (despite the obvious fact that I don't know much about rectal drainage for rectal cancer).
Firstly, I am sorry to hear that you are having these difficulties and secondly, It must be even more frustrating trying to cope with it on your own without support.
It is with regard to the latter, that you have probably come onto this site to try to rectify. I have been on here for a few years and have not come across a similar request for information, so I am presuming that not many people have experienced this. In which case, maybe this site is not the one to be looking for the answer to the questions you pose.
I have Googled ‘Managing rectal drainage for rectal cancer’ and found the site below:
https://community.bowelcanceruk.org.uk/forum/19097-rectal-cancer-mucus..
There are many other sites listed which might have support groups attached to them.
Also, there is the more obvious approach, which is to seek medical advice on this subject. It ids likely that incontinence or stoma nurses might be the likely ones with knowledge on this type of problem.
I do hope you mange to find some informative, practical and emotional support soon.
Best wishes
Bill
MeetAnOstoMate is a remarkable community of 41,405 members.
“I mostly read and still feel like I belong.”
“Doctors took notes; they want others to find this website.”
“From midnight blowouts to big wins, there’s always a hand to hold.”
Posted by: GoinWithTheFlow
Hubz had a regular checkup with the oncologist on Friday (his numbers are improving), and as they were asking how he's feeling since surgery, they became curious about how he's doing so well with his ostomy, both physically and mentally. He credited doing research online, trying different things, and especially the support from this group. They were asking because they see so many patients struggling to adjust.
We described this group as folks with every kind of ostomy, some for days while others for decades, but all willing to share what's worked for them with the caveat that every individual is different.
We described the most valuable element as feeling like you're not alone in this. That really piqued their interest, and they wrote down the link. It seems they had a few people in mind that might benefit from the community and thanked us for telling them about it.
You know, we can't remember exactly who we learned about this group from, but we're grateful for it every day! Thank you all! 🌻