Bloody mucus discharge

Saw you’re in Ohio, are you able to go to Cleveland Clinic for care even if they’re the ones managing the bigger things like surgeries?

I can relate to the nausea, loss of appetite, and change in taste buds. 

Do you still have any of your colon? Have they done anything to your small intestine? 

If you’re on Instagram there’s a couple of friends who have an account Double Baggin It (I might have the spelling a little off) I think they receive care either in Columbus or Cincinnati- it’s a C and it’s south of me but I can’t remember at the moment. But if you message them they’ll respond and might be a helpful resource closer to you. I know at the least the woman had some care at Cleveland Clinic in the past. 

I looked up their account b/c it was bugging me I couldn’t remember which city lol. They are in Columbus. 

You’ve gone through a lot. It really really sucks when you feel you’ve been failed by your medical providers, under certain circumstances/surgeries your life is in their hands- so you want to feel confident that you can trust them. If you ever do find a way to make a trip to the Clinic manageable- I have a great colorectal surgeon. She held my hand before they put me under anesthesia for both of my surgeries this past year. Thankfully, she not only is a compassionate human but a complete boss when it comes to these surgeries. 

What type of service dog do you have?

How are you feeling about your new care team?

I know what it feels like to feel alone even if you’re surrounded by a 1000 people. These conditions take a lot from us and then some. And then we have to figure out how to go on living-really living- despite the past and whatever the future may hold. 

My Drs sent me to food aversion therapy because what I like/don’t like has been so different and appetite signals are being screwy so forgetting to eat happens too often. 
Something I’ve liked consistently since surgeries is Taco Bell which I wasn’t crazy about before but now pretty much any day I could go for something from Taco Bell 😆 I swear it has to be all the sodium or something. My Dr said my body will crave what I need. I’ve also been adding lemons/limes to most of my drinks 🤷🏻‍♀️

I am hopeful for you that you’re at the right place for your specific needs now. 

Hi Marco,

  I'm with crappycolondiaries on this one, although I prefer to call her Jodi (wink, wink).  You need to be seen by competent folks, and the best ones near you are at the Cleveland Clinic.  They have a number of satellite offices in Ohio and I think the closest one to you is in Lodi (about an hour and a half northeast of you on RT 71N), which is an hour closer than Cleveland.  Even if having surgery or long term care at their main hospital in Cleveland (or Lodi) is out of the question it would be worth it to you to have their team review your health records and suggest a course of action.  They should only need to see you in person once to be able to accept you as a patient and then figure out what's going on, and any additional testing they want done can be done locally to you.  At least then you'll know what's going on and if the Docs you go to after that say anything else.......you know it's time to get another Doc.  I've  been to the Cleveland Clinic and was very impressed with their staff and care......and it sounds like exactly what you need. 

Your taste buds are telling you something is wrong.  If you lose your appetite it means things are getting worse.  At the very least call the Gastroenterology office at the Cleveland Clinic and explain your situation.  They may have other options for you as well.  It's worth the call. 

;O)

bob  

It never fails to amazes me when I read the topic of a thread here at what I find from the writer. 

Your story mimics mine. MY go to fix for UC and CD was prednisone.  over 35 yrs  on it. and still on it presently for arthritis. 

 These news biologicals nearly killed me, inwhich the drs felt I should be their gueina pig.-- for years..

Then..2016,   Found a  medical team, had the large intestine removed in hopes to reattachment to  the stump.. That is until shortly after the ileo surgery and some 6 yrs later, I continued to have bloody discharge out the butt hole.( it was being controlled by various meds up until recently) 

 Like you're experiencing.   Clear Mucus is normal. Bloody not. Discovered  Chron's  traveled to rectum or more accurately, laid dormant there.. Who knew??

.  SO the rectum is scheduled to come out this May 2023. 

You need to get to Cleveland Clinic , or get a referral from them.. I went there because  at age  25  I LOST MY HEARING COMPLETELY , AND  BEING A CHRON'S PATIENT, I NEEDED ANSWERS AND THE BULLSHIT TO STOP... There, they informed me the hearing lost was secondary to the IBD. I have Cogan's syndrome.

So when you mentioned you were born deaf, I was interested and am still interested in "hearing" that story..

I aquired deafness post lingually. Have a cochlear implant but it only gives me about 10% edge as a life time member of  the "speech reading club". Like you.  

What age did you lose your hearing? when was the diagnosis of IBD made? You have my full attention kiddo.

------Warrior from NJ

Yes, I had similar symptoms from my retained rectum.  The inflammation is still there.  Typically mesalamine suppositories with or without cortisone suppositories are the management of choice. 

Agree.

If she has not retired I recommend getting a consult with Dorothy Doherty at the Cleveland clinic.  I have never met a more knowledgeable WOCN who is also an ostimate.  

i would agree with you gentle john.

but it is a temporary solution.

tried that steroid foam. blew completely out my ass in ten seconds.

suppositories didn't help.

arent u concerned risk of cancer in dead rectum?

thank you. will reply tonight.

im very interested in knowing more as i can relate

in- deaf- intely.

I've been concerned about  the rectal discharge I've been experiencing. My iliostomy was back in October, result of a perforated bowel. I had been experiencing problems for over 18 months before that, IBS or Crohns but no definite diagnosis. Just had extensive blood work and am doing a CT scan this week, should be discussing the results with my gastro next week. I got the  impression he might be checking for Crohns, had no idea it could still be in my rectum. The discharge has odor and sometimes is light green or reddish. At least I can ask some informed questions now, thank  you!!

discharge from a non functioning rectum green?  that is a first.

my bag i see green output which i believe is normal  due to small bowel ..but...green from rectum? nope.. 6 yrs never green...red bloody yes..but nope..no green. very strange that is going even if intermittently. get that checked.

I was told and believe chrons travels. if now its in the dead rectum..and rectum will be removed, im concerned if this will cure my situation or will it go some place else. . scary. but mindful. 

Hi dawnie,

  Crohn's can manifest anywhere from your mouth to your ass, simple as that.  Ulcerative Colitis is really just a less severe form of Crohn's that appears in your colon.  But it's really all the same shit.......no pun intended.  It's your body's immune system attacking your bowels.  When it's only minor, causing inflammation of only the innermost layers of your intestine........it's called UC.  If it gets more severe and involves more layers........all the way to the outermost.........it's called Crohn's.  

  Rectal discharge is typically just mucus that is normally secreted by the colon, and is mostly clear in color.  Red discharge is obviously blood (which could be from a variety of reasons) and not a good thing.........and green discharge usually indicates infection.........also not a good thing.  I'd call your Gastro and ask if they'd like you to bring a sample of your green discharge.....and see if they want you to have bloodwork done.   Any lab could easily identify what your discharge really is, and routine bloodwork would indicate if you have an active infection going on.  A scoping wouldn't be out of the question either.  Get it checked out, as these things don't normally fix themselves.

;O)