Has anybody experenced a rash below the stoma where the wafer comes in contact with your skin if so, is it anythng to go see a dr about? or does it simply go away
Mike
Jul 17, 2010 1:44 am
Pinky
Jul 17, 2010 2:38 am
Hi Mike - if it is red and itchy, it is probably a fungal rash (yeast) and you can use Desenex powder around it, and blot it a little with skin prep to make a sticky paste. It will protect the skin and also still let the wafer stick. I get them a lot especially in the hot, humid weather we've been having in California this week.
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Pinky
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Posted by: Nini4
Well, I hit the two year mark. I went back and read my posts from when I first found this site. I was very fortunate in that I stumbled upon it only 4 weeks post op. I have said many times that this community really saved me. The first 2 weeks after my surgery I shut down completely. It wasn't until about the 3rd week that my son came in to my room, flicked on the light and told me I was going to have to get back to living because I was scaring him. I had fallen into such a depression. He ticked me off, but it also made me stop and think- what was I going to do? Feel sorry for myself and sulk, or be grateful I was alive.
I've re-read my journals from that time and it was after my son kicked my butt, so to speak, I took an honest inventory and had to dig deeper than I've ever had to. I mean, I had survived a pretty nasty divorce, after a pretty crappy marriage and that was tough. But this was different. I felt like I was now a handicapped person who would be limited in their life and be looked at as a freak. My mental state was precarious, at best.
But then I found this site. I just lurked a bit before posting. I read so many of the other stories and I started to see just how full my life can be, I was not handicapped, and certainly not a freak! The stories of survival, the sense of humor, the support and compassion was inspiring. It was then I made myself get out of the dark, and get my sh*t together.
Not all rainbows and sunshine at first, hardly! But with grace from myself - to myself, and the kindness and willingness of the folks here to be supportive, non judgemental and openly share intimate details about their life circumstances, l not only survived but thrived.
I think of all the years I had suffered with such extreme pain, barely functioning, and the many hospital stays and how that is all behind me now. (All fingers, toes, and legs crossed that I never have to go near a hospital for myself ever again. I think I'd rather have a fork stuck in my eye. I loathe every about them.)
So, to everyone who has been a part of this journey with me, to say thank you is not enough. I'm forever grateful to know you all. My Angels, each one of you.
And as the Grateful Dead famously said,
"what a long strange trip it's been!"
Im so happy I'm tripping with you all.
Froh
Jul 17, 2010 4:52 pm
I don't know if you have this in the states, but up here in canada we are assigned an ET nurse the moment we get an ostomy. Any kind of skin deterioration around a stoma can be trouble. What you may have is folliculitis. Each time you remove the appliance, you damage the hair follicles and they infect but this can be controlled (though it's a pain in the ass...I know). But an ET nurse should be your first stop. If you don't have one, see if you can get one. They know better than doctors how to deal with these issues.
Cheers.
Froh
Cheers.
Froh
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weewee
Jul 17, 2010 5:39 pm
like he said i have to shave around my stoma so the hair doesnt cause problems and when i leak around the stoma i get a rash and i just air out a few hours a day while changing and it helps out like i said b4 i change so much that you also can be removing small layers of skin and it becomes sore try and make your waffer unstick to your skin like getting it wet and maybe you wont get that rash
gutenberg
Jul 17, 2010 7:12 pm
Hi Mike, I know its another problem we don't need. I had this rash you speak of but it was before I finally got to using the Adapt Rings and was changing at least twice a day and sometimes more but as I finally figured out how to get the Adapt rings to a perfect size by using a tapered dowel and had a seal that allowed the wafer last up to a week which gave the skin enough time to heal thus ending the problem. After all the fooling around trying to make a taper and marking it you land up with a nearly perfect seal each time, but last week at the dollar store I found a kids toy that was tapered on each end and made of some sort of plastic and using the measure of the wooden one did the same with this, and all for a dollar, worth its weight in scallops if you live in Louisiana, Ed
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Hope this helps
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Hope this helps
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