Hospital Update and Seeking Advice on Stima Resiting

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2
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3706
airforce1
Mar 04, 2011 4:58 am
thought i would let you guys that have been giving me well wishes for operation have been in hospital with an infection home on leave go in on the 14th march to have stima resited anyone on board had that done bit worried about what it intails
bikerboy
Mar 04, 2011 5:06 am
ret navy here if you want to chat sometime Im usually on line here.I hope you are doing well with your latest op.Im pulling for a quick recovery.
Are you still active duty.Best time of my life was the nav.
takecare
bikerboy greg
Posted by: ejbetty

Geekyjen,

Thanks for the reply.  I will be seeing my doctor on Friday and mention Entyvio.  I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared.  The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade.  Turns out I have been diagnosed with LUPUS. It is attacking my nervous system.  I had ulcerative colitis in 1996 and they had to remove my colon.  Had a J pouch for 10 years, until it started failing.  I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently.  I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared.  I have had two hospital stays now because of the blisters and the paralyzing incident.  I will be dealing with this forever now.  I have just been working on acceptance.

I love this website because of wonderful people like you!

 

Betty

airforce1
Mar 04, 2011 5:10 am
how do i reply in the chat room