This seems to be a constant problem especially for ileostomates who have a high output. Of course, there is the obvious solution and that is to restrict your intake after a certain time so less will be passed while you're sleeping. Another one would be to use a high output pouch only when you are sleeping. If you use the convatec two piece system this is easily done by just snapping the smaller pouch off and replacing it with the high output one. I am sure others will have additional good suggestions for you.
there is bags that have what i call a spicket at the end of the bag instead of the opening with the clamp its a nice size bag and i find i last the night sleeping and will give you confidence to do the same, i still get up in the middle of the night but its only once and some nights i sleep all the way thru, its by hollister and they take most insurances i dont know what size you need but if you go to hollister.com you will be able to see all the new items. they get new stuff all the time, i have been using these bags since july and i love them, they are called "new image high output drainable pouches" i will check in more often and see if it worked out for you, i first had a colostomy from 04-10 and just had the illiostomy put on for good, i hope this helps and plz if you need any other help ask, ill be happy to pass on any useful hints
I've had my ileostomy fo over 30 years and it's rare to ever get a full night's sleep without having to go to the bathroom and empty my pouch (I prefer the word "pouch" to "bag". It sounds less icky!) I agree totally with Xerxes. Try to limit what you eat before you go to sleep. If you eat a big salad you may as well just stay awake!
Usually one visit to he bathroom at around 4:00 A.M. does it for me. I use a Convatec and I don't think using a larger pouch would make any difference for me. I would still want to empty it, even if it wasn't totally full. My technique, which I've mentioned when this question came up before, is to not even dwell on it and to just get up and empty the pouch. If I start thinking about it (can I make it till morning? will I get back to sleep? etc.) my brain will turn on and I'll never get back to sleep. Also, I keep a night light in the bathroom so I don't have to turn on all the lights. Hope this helps.
if high putput at night is a big proplem then try eating around 5 large marshmellows half an hour before bedtime.along with the gelling sachets this will help to slow down output and you might get a ful nights sleep.give it a try and see how you go.let us know how you get on
Talk with a Hollister representative about their high-output bags with soft taps. These bags are designed for ileosomates with high liquid output. The bag has a plug under it which will allow it to drain into a much larger bag. Hollister is good about sending people samples for their products. Good luck!
Also I have to keep my stress levels low or my bag causes problems such as gas, not emptying then get a headache or bag emptys too much at one time and will burst.
Unfortunately, I have to take just a small dosage of morphine - the side effect is constipation and with a sleeping pill I can least get 6 hours of sleep without getting up. You are taking the right approach by talking to people and trying different foods to see what agrees with you, hopefully, in time you will be able to control your stoma so it doesn't make you miserable.
Can anyone answer: When your bag is 3rd full do you get stomach cramps or get a headache? Regardless if it is liquid or solid I have an ileo. Good Luck Butterfly48
I use the Hollister New Image 18013 High Output Drainable Pouch. When I was in the hospital, the ET nurse told me I could get tubing and a large collection bag which could hang off the side of my bed if necessary. I never ordered it because the high output bag was sufficient. I have not seen the large collection bag in the catalog so you should talk with a Hollister rep about it. Keep in mind that the 18013 pouch is intended for ostomates with liquid or muddy output. Solid stool will not drain out of the bottom tap. Good luck!
PS: I never get cramps or headaches resulting from the fullness of my bag.
i do use the ileo gel but i cant be bothered turning toilet lite on to put another one in if i have more watery substance during the nite i think my brain is soooo switched on to just get up during the nite ive actuall just sprawlled onto the floor hahahah not funny at the time but the illeo gel works great ...i thought somone had another idea should of read first .xx mare -mooza
|i never heard of the swim/shower caps to put on stoma? omg that would be great, i use hollister and only the convatec paste and strips i would love to look into that plz tell me, can i find them on hollister site? ty for the info
Mini caps from Coloplast might be what you are after for shower or swim or intimate.
Couldn't you take a dose of Immodium before bed? Perhaps that would at least cut down on the number of times you have to get up. Might also halp you sleep better - I know it makes me sleepy when I take it.
Hi, everyone. I'm a newbie here, though I have lots of experience with other fora. I don't have an ostomy myself, but am supporting my partner who has an ileostomy.
The problem of getting through the night with having to empty the pouch every couple of hours has been messing up her sleep and therefore messing up the rest of her life. I went looking for solutions and found this discussion. Thank you! She contacted her supplier, and has been trying out the Convatec pouch with its spigot-ish tube at the bottom.
Her supplier's support person also sent along a couple of urinary collection bags, which come with attached clear tubing which connects inside the pouch's spigot. The problem with this setup is that the diameter of the tubing is narrow at the two connection points; it clogs very easily with the undigested bits.
I found that I could replace the original tubing with larger-diameter clear tubing bought from a hardware store: 1/2" inner diameter, 5/8" outer diameter. This goes over the outlet from the pouch, and over the intake of the urinary bag. It was somewhat difficult to remove the original tubing from the urinary bag. What I found worked was to cut the tubing just outside of the bag, then push a very small flat screwdriver between the tubing and the bag's intake to break the contact between them in one spot. Then needle-nose pliers to twist up the tubing, breaking it free from the bag.
The problem we're working on now is emptying the urinary bag. Its outlet is too narrow, and again clogs easily. Since we're on a limited income, and my partner's insurance is refusing to cover the expenses for her supplies, we need to be able to empty, clean, and re-use the puch and bag. Can anyone suggest methods for unclogging, or other good collection systems? Thanks!
Hi Bunsen. It seems to me that you are looking for solutions to treat the symptom, but not the problem. Your partner is losing an enormous amount of fluid and that situation needs to be stopped asap. There are lots of medications that can help, ranging from Imodium, Lomotil to opioids. Diet is also important. Your partner's GI doctor will suggest what's best. I have been living with an ileostomy for 6 years now so my advice comes from personal experience. I can tell you that I don't eat late dinners and I use a large drainable bag from Hollister. I usually wake up twice nightly to empty the bag regardless of how much or how little content there is, and I fall asleep right away with confidence that the bad won't fill and burst. You have come to the right place for information on ostomies and there are some great discussion threads on your area of concern. Good luck!
It's not that simple, I'm afraid. The ostomy surgery was performed in an emergency; the stoma is neither well-shaped nor well-positioned. If the stool thickens more than slightly, the stoma blocks and distends. The skin around it gets irritated and the flange starts to leak.
My partner consumes large amounts of home-made rehydration fluid, per the WHO recipe, and her doctors are keeping an eye on her bloodwork.
The only flange system she's found so far that can accomodate the sunken-in stoma is a highly-convex flange from Convatec. It doesn't look like she can use the Hollister stuff or the Coloplast night pouch.
Diet and meal scheduling are a work in progress. :-|