So this is my first blog post (on here, anyhow)... I'm not quite sure where to start.
I've got an ileostomy and have had it for just over 4 years. I have a condition called neurofibromatosis which caused nerve issues that led to other issues and eventually a toxic megacolon with perforations. But I'm better now—the picture of health, sort of.
I've been spending the last few years eating as much as possible (not that it does a lot of good... can't seem to gain weight for love or money).
I was in a relationship recently, but it ended badly (partially my own fault. In retrospect, I was pretty terrible at relationship "stuff").
This is probably not quite right for a blog. I'll write a better one tomorrow.
Captain Tact
Apr 28, 2013 2:33 am
Bill
Apr 28, 2013 5:15 am
Hello Captain Tact. Thanks for you blog --- it's a good start. Best wishes Bill
hometown
May 03, 2013 4:59 am
Hi Capt, hope you come back and fill us in on more of your life. Good luck, Hometown NJ.
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Posted by: w30bob
Hi gang,
I was thinking what a great resource this site has been for me since I found it. It would have been really helpful, but maybe a bit scary, to have found it before my ostomy, but that's water under the bridge. But I got thinking about it, and now I'm questioning why doctors and hospitals don't provide this site's contact info to any patient even considering an ostomy today. And how can we change that so potential ostomates can learn about the road ahead for them by getting on here and asking questions before the docs go chop-chop. How exactly do you get all hospitals to provide their patients specific information, like this website?
I just happened to find this site something like 4 years after my ostomy when I Googled "ostomy forum" or something like that. But I never found it during previous searches.....so I found this site pretty much by pure luck. We need to find a way to make this site available to new or soon-to-be ostomates......as that's when we really need to commiserate with fellow ostomates. Anybody have any thoughts on how we do this?
Thanks,
Bob