Sharing

Jenny, Nichole, I have had an ileostomy for 8 yrs.  I want to share my story hopefully to assure you both life will go on, and we do find ways to cope, so here it goes,  I had just turned 50, I had alot of upper bowel pain, it turned out to be cancer of the transverse colon and a cancer polyp in the lower  part of the colon. They removed all of the colon except the rectum and connected the 2 parts back together.  I had a respertory arrest.  This was the last of May,  My husband of 32 years who I adored died in August of a sudden heart attack.  In Dec.  same year I was having a routine check of the surgey site by colonoscopy and the cancer was back again.  I was informed i was a very agressive type of cancer.  And to be honest I had no desire at that time to live my husbands death had devestated me, the nly reason I had my last surgery was for my son, it would leave him witout a mother or father at the same time.  He was struggling so hard with his fathers death.  So I had the surgery and went on.  Man it is so hard sometimes but I think just knowing your not alone helps.  Thats why I do alot of teaching & sharing with people who have new ostomies or the Dx. of cancer, maybe thats why I lived I don't know but it seems right.  Thanks for reading my story, The very best to you both!!
eddie

Sorry, I got interrupted in the middle of the story, after the second bout of cancer I had all bowel and rectom removed and since then have had and ileostomy.  It helps if you don't leave out an  important par! Ha!
eddie

Dear Eddie,
Thanks for posting your story.  It is heartbreaking and inspiring.  What a catastrophe in so many ways; such terrible losses to battle through in such a short time.  How you were able to get through all this is amazing.  Thank you for sharing your story.  I absolutely admire the grit and courage you have drawn on to keep going and help others find it within themselves to do the same.  
It reminds me of when I worked with refugees.  I knew many people who had survived the seige on Sarajevo and the stories of survival were appalling.  I asked one time a couple how they managed to keep going when honestly, it would have been so much easier and relief even, to just die.  And they both told me....there was always someone who needed you. Someone who was worse and needed you to live so you could help them.  They survived and eventually life did get better.
As you say you found the strength to live for the sake of your son.  Your story is living, breathing encouragement to so many.
Thank you.

Your comments are very kind I reread my post and noticed all the typo's  It 's a darn good thing I became a nurse and not a secretary!!!
eddie

Your story is really amazing. God bless you.

There was a period in my life when I just wanted to give up and go to whatever place it is we go to. I looked at life as an enemy as opposed to my friend and let the gloom overwhelm me and it seemed to be easier to give up than exist.

I think your story is a wonderful example of faith to believe in yourself and those who love you.

Great job Eddie.


Ken.

Hi Eddie - when I was struggling to live or die in 2003 after horrendous surgery, including a temporary ostomy, and my husband wouldn't even sleep in the same room with me, my lovely daughter who was 17 at the time (and very squeamish about yukky medical stuff) came in every night for a month and lay with me all night.  She said it was because it was so much cooler in my room - but to me it meant the world because someone loved me enough to overcome her revulsion and just "be" with me.  My kids have stuck by me through the worst medical and psychological stuff (including my husband divorcing me and remarrying within 2 months of the divorce being final - to a woman the kids despised - essentially severing ties).  

It is rough to keep going, but after 5 years of no ostomy and pain/suffering going to the bathroom "the real way" I am, after having the permanent colostomy 2 years now, happy to be alive and moving on with life.

I just finished up my master's in public health and graduation is next Friday!  Whoopee!!!!    

Hey KT,

What a wonderul statement from your heart. Never give up as you say. Contrast this to herculisa's sentiment that one might be better off dead surely says a lot about the cross section of humanity (or lack of) on this site. Thanks.

X_

I am constantly amazed at how well some people can overcome incredible pain and suffering and discover that, inspite of everything, life is still very much worth living. I found this quotation from Kahlil Gibran that describes the personal strength of so many of our ostomates here: “Live life so completely that when death comes to you like a thief in the night, there will be nothing left for him to steal."

Hey eddie maybe we all got through to teach others ! I share my story with many people But i never ever wanter to die all i wanted to do was get better dying never ever came into my mind...But somthing I did do was Bunjee jump wen i got my first of a couple  temp Ilieostomys. I thought life was over and that was only cause i was turning 30 years old ... Working and talking to new osto's at my Local Colostmy Assoc. Has been An Experience in itself i want to post my Bunjee jump Video  on here but not sure how (sound down of course ) lol...Yes i Actually have heard of similar storys to yours its heart breaking but to go out side of the doors we live in and look around life is still moving at its normal pace thats somthing i had a good look at through my 21 year experience with Crohns Disease and long spells between operations and choices being left up to me . Too have or Not to have a stoma and soul searching my life "stopped "..But the world was very busy i wanted in Big Time ...xxx thanx eddie xxxmooza " I still Struggle with pain but wanted to put my 2cents in xxxx"