HAVING AN ILEOSTOMY, SOME OF MY BODY PARTS are gone, but some of my remaining inner bits seem at times to be straining to do something more than I have been asking them to do. I think that it’s mostly my nerves, my bones, and my heart, although my brain pitches in occasionally with its two cents. They seem to feel like they could be doing more, that I could be doing more, that is. It’s too late, I mutter. I’m beyond all that. I do think often of those things that I could have done, but didn’t. Why not? You can only do so much, I say back. You have to sleep sometime, you know. But still… you would have been good at that, or that, or maybe even that. Yes, well, I didn’t make those choices. I liked what I chose to do and, like Satchel Paige, I’m not looking back, something may be gaining on me. But those persistent ghosts are still out there, and you hear them moaning every once in a while. All I can do is smile ruefully and moan back.
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This site has been a blessing for me in learning how to cope with and navigate this journey as an ostomate. I have a colostomy as a result of a perforation in my colon since May of this year. I don't know yet if it will be permanent or reversible. The people on here have provided me with so much advice and information about living with an ostomy that I don't think I could get anywhere else. You all have given me hope and a place to come to for support. I still struggle with acceptance, but know that it will come if I am patient. Patience has never been my strong suit! Also, I love all the humor, although it really pissed me off when I first came on here. Thanks to all of you.


