I had my colon removed in March 2023 and am considering the J-pouch surgery. Can I have some stories of experiences and what to expect?
Calat4
Jul 04, 2023 12:56 pm
Axl
Jul 04, 2023 1:13 pm
Hiya C
Go to collections, top right
Premium content
J pouch, right down the bottom.
That'll get you started.
MeetAnOstoMate is a remarkable community of 41,409 members.
“I found real people, real humor, and answers I couldn’t get anywhere else.”
“The support here impressed my husband’s medical team - they plan to recommend it.”
“This community saved me when I thought I was a freak. Now I’m thriving.”
“Thank god for this site - I finally knew what to ask my surgeon.”
Posted by: HungryHamster
Hi,
Not blowing my own trumpet or anything, but I was at the healthiest I had ever been prior to getting UC symptoms. I was eating very healthy and exercising 6/7 days. I'd love to know if any lifestyle factors affect UC, but I suppose I'll have to wait until they figure out what causes it.
I've been trying to occupy myself by being in contact with friends often, but some days I am really not in the mood and find it hard to drag my mind away from what ends up being a mountain of thoughts. I suppose it's all part of the learning process and I'm sure it'll happen less with time. This website has been great so far. It's great to be able to write this sort of stuff down and chat with people that understand what's going on. For that, I thank everyone on this website.
Thanks,
Hamish.
IGGIE
Jul 10, 2023 3:55 pm
G-Day Calat4, I had ulcerative colitis for many years and in 2004 I decided to get it fixed. My doctor said I could go for either an ileostomy or a J-pouch. I gave it some thought but decided if I went for the J-pouch and it didn't work, I could always go back to a stoma. Well, I put up with the J-pouch for 18 years but all that time I had problems, always looking for a toilet but the worst accidents at night when you have no control. So in 2021 I decided to have a complete ileostomy and have my butt stitched up and a stoma. I wish I had done that in the first place; it's the best decision I have made. I don't have to look for toilets all the time. I change my bag every Friday and every Monday and it's easy, only takes me about 5 minutes to do a change and I'm ready to go. I have only had a couple of leaks in the last 2 years but not a big problem. I did get a parastomal hernia but they fixed that for me a year ago and things are 100% fantastic. I hope this helps, Calat4. Let me know how you go. I live in Australia. Regards, IGGIE
Advertisement
Hollister
Skin barrier extenders are ostomy accessories that can help your skin barrier fit better and last longer.
Learn all about skin barrier extenders.
Learn all about skin barrier extenders.