The answers I need are related to restrictions when you have your rectum removed and your butt sewn up. I am facing a proctolectomy very soon.
Some of you know my story.
I have had an ileostomy since 2016 and in the course of 6 years, I continue to bleed. My doctor was hoping for a reconnection, so he left the stump, and that stump over the years has Crohn's now.
The medications were in hopes to solve the mucus and bleeding problems, but after 6 years, you have to consider cancer of the rectum since the main issue is proctitis (and non-use of the rectal piece).
The surgery will be laparoscopic. I am not worried about the procedure; I'm more concerned post-op.
For example, movement?? Will you be able to get in and out of bed without tearing stitches?? What are the limitations you will have once your rectum is removed and your butt is sewed up?? I know there are some obvious answers, and everybody who goes through the surgery has different outcomes... everyone is different... everyone is completely different, so I'm just trying to get a few ideas of what it's going to be like. Whether I'd be laid up for a week?? Would I be able to move around successfully by myself?? What kind of post-op care might be needed to have an outside visiting nurse?? To come in??
I'll take whatever you give me as far as advice and comments, experience...
And the most important question... were you cured of IBD? Or no longer in need of meds to control it??