Looking for Post-Sigmoid Colectomy Support and Friendship

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15
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981
abizai.rebollar
Dec 25, 2023 9:02 pm

I recently got a sigmoid colectomy. It's been a week and I still feel kind of in the dark (knowledge-wise). Anyone that wouldn't mind being bothered by what may seem like dumb or annoying questions? I would like to make more friends through this as well. Thank you 🙏

NancyCat
Dec 25, 2023 9:13 pm

Welcome! You will find that everyone here is very helpful. Nothing that you can ask could be too dumb, annoying, or gross. We're all here to help and provide support for each other...

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Riva
Dec 25, 2023 11:19 pm

Hi and welcome. Education is key on this new journey of yours. I suggest you check out UOAA, United Ostomy Association of America. It's our national organization. Also, Ostomy101.com. You will learn about foods, blockages, skin care, clothing, ostomy products, travel, activities, and a whole host of other tricks of the trade. You might also want to check out a local support group near you. Just remember you are not alone on this new journey of yours. Wearing a pouch does not define who you are. There are solutions. We're here for you. Best of luck.

Justbreathe
Dec 26, 2023 12:09 am

Lots of friendly and helpful people on this site - you've come to the right place - welcome… JB

abizai.rebollar
Dec 26, 2023 4:56 am
Reply to NancyCat

Thank you so much!

 

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abizai.rebollar
Dec 26, 2023 4:56 am
Reply to Riva

Thank you!

AlexT
Dec 26, 2023 7:06 am

Ask away, someone will have an answer.

LJB222
Dec 26, 2023 9:13 am

Fire away! This group is friendly, knowledgeable, and no one is left feeling lonely :-)

Caz67
Dec 26, 2023 10:04 am

Welcome to the site. Nothing is off limits on the site.

Morning glory
Dec 26, 2023 6:30 pm

Welcome to the site. You can ask as many questions as you want. No one will make you feel like you have asked a stupid question. We all learn from each other.

Kirsten
Dec 27, 2023 5:05 am
Reply to NancyCat

I had a sigmoid colectomy in March this year. I'm happy to answer any questions you may have. Warning though, mine went super well and I felt like I got my life back - until I developed complications in June and had a loop (temporary) ileostomy in September. So my story didn't go in the expected direction, and my experience may not be typical. I don't want to give you any unnecessary worries. My complications were considered rare.

abizai.rebollar
Dec 27, 2023 5:35 am
Reply to Kirsten

I understand and would still love the chance to ask questions! The more I know, the more comfortable I am feeling about what I went through. Everyone has been so helpful.

Mysterious Mose
Dec 27, 2023 9:32 pm

No dumb questions here. Personally, I parted ways with my colon 2 days shy of a year now. It was a less than amicable parting, but I have forgiven it. :-)

Daniel

Mom2Sons
Jan 08, 2024 12:47 am

Welcome to the site. I don't post a lot on here, but I do read everyone's comments most of the time. A lot of good information and very supportive. I've had a permanent ileostomy since January 2018 after a failed j-pouch. I'm not without a hiccup (with my pouch) from time to time, but I'm healthy, I travel, and I'm enjoying life. This is a very good place to ask anything you want. So many different experiences. You are sure to find help with any problem concerning all things ostomy here. 😊

tanfishjen
Apr 22, 2025 5:08 pm

I'm 5 days away from the same surgery. Not sure if it matters, but I will have a permanent stoma. I have so many questions about the embarrassing things. I'm also menopausal and a chubby mess, so lack of information is not my jam.

I'm terrified for my husband as I take the bowel prep!!! Let's just say I have a track record of hitting objects not meant for poo. I also cannot imagine being naked and twisted in some weird position with all my fat freely flapping around…weird, I know.

More than anything, I would like to start sniffing out the different suppliers and cost comparisons. I can go on and on.

SusanT
Apr 22, 2025 5:23 pm
Reply to tanfishjen

Welcome to the site. This is a pretty old thread, but hopefully, a few more folks will come along.

I recently did a bowel prep with my colostomy, and I assure you it's a learning experience. My best advice: get a large plastic cup. Empty into that and then dump it into the toilet. The watery output seems to go everywhere, and no other emptying system worked for me.

And practice before you prep. Get your system down if it's different from your usual system.