Hello, I'm In the UK and have recently had ileostomy formed I am 7 weeks post op today. (I had sever ulcerative colitis qnd it was life saving as I was very very ill).
I am finding it very hard at present as I have tried a few different pouches but I keep getting very uncomfortable pain, I should mention I have stoma and right next to it a small.mucus fistula that was formed by my surgeon. I have to cut my pouches to incorporate the fistula as if I don't It can leak/ build up behind the water making skin sore.
What I would like to know is does anyone have similar?
How long post op roughly was it before the pouching became comfortable? I can't do much physical activity as its so uncomfortable. I have granulomas underneath my stoma. My stoma sticks out by about 2 inches, and is currently 40mm around. (Very big for ileostomy I think, as a friend has had colostomy and hers is 28mm!! And pretty flush to her tummy..
I have no sign of leakage but I do get a burning and pulling sensation. Which is driving me mad. Only when I'm vertical..of I'm laying or sitting I don't feel it as strongly.
I have a lump behind the stoma, which I suspect is peristomal hernia. Does anyone else have a hernia... would love to hear if what I'm experiencing is normal.
Thanks