Has anyone had a recurrence of Crohn's after an ileostomy? What are your symptoms?
rosebud621
Jul 13, 2024 12:50 am
warrior
Jul 13, 2024 3:06 am
Yep. 🙋♂️ What happened after the ileo surgery in 2016? The bleeding from the stump at the rectum would not stop. Several years of meds to control it failed. At this 7th year mark, doctors confirmed CD in the rectum. It had to be removed. It was in 2023.
Now... arthritis has gone into overdrive. Is RA a symptom of IBD?
Your question is a bit tricky.
You mention CD with an ileo. Any symptoms?
There is colitis (UC).
There are people here with UC or CD, and either an ileo or colostomy.
I think the better question would be "Do you feel cured of IBD now that you wear a stoma?"
Because what really are symptoms of CD? The assumption is bowel issues should be gone if the diseased colon is removed. True or false?
AND... remember all those meds you took back in the day of flare-ups? Who's to say those meds made latent symptoms now rear their ugly heads?
To blame IBD for side effects or symptoms because of these meds needs thought.
BIOLOGICALS. Just the word alone gives me chills.
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Justbreathe
MeetAnOstoMate website turned out to be a lifesaver for me. I say this because, for me, this ostomy journey was a devastating event both physically and mentally.
Here, I found folks who understood my feelings even better than my family or friends could. Only a fellow ostomate can understand how you really feel.
Information sharing is key, as well as support and understanding, to ultimately bring more harmony into our ostomy life journey. I found here, virtually no ostomy questions that are not touched upon. Questions which some might feel, may be too trivial to contact a doctor about or even too shy or embarrassed to ask their own doctor about. They are all addressed here.
For me, anonymity was very helpful in seeking answers to each phase of this life changing medical and mental event. Sharing initial trauma feelings, ongoing support and finally acceptance was what I found with my membership here. I am not sure what my mental and physical attitude would be today without having found this site.
Additional benefits included: finding products and ideas to help with daily maintenance, innovative ideas and as a bonus - some great humor.
After all “laughter IS the best medicine”.
I have been a member for 3 years, an ostomate for 4 years - yes, I certainly wish I would have found it immediately after surgery but so very thankful I finally found it when I did as I truly believe it turned my troubled depression and situation into a more positive attitude and acceptance.
Sincerely,
An Ileostomate nicknamed Justbreathe 🫶🏼