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Jul 13, 2024

Crohn's Recurrence After Ileostomy - What Were Your Symptoms?

This topic is about the recurrence of Crohn's disease after having an ileostomy, which is a surgical procedure that creates an opening in the abdomen to allow waste to leave the body. The discussion focuses on whether people have experienced a return of Crohn's disease after this surgery and what symptoms they noticed.

Here are some helpful insights and advice shared by others:

1. Persistent bleeding from the rectal stump after an ileostomy might indicate Crohn's disease activity in the remaining rectum. In some cases, this has led to further surgery, such as a proctectomy, several years after the initial procedure.

2. Crohn's disease can sometimes cause symptoms outside the intestines, like severe arthritis or even rheumatoid arthritis. These symptoms might flare up with or after a recurrence of the disease.

3. Common symptoms of Crohn's disease recurrence include:
- Abdominal pain and cramping
- Changes in stoma output, such as differences in volume, consistency, or frequency
- Nausea and chills
- Weight loss or other changes in weight

4. Medications, particularly biologics, used to manage Crohn's disease can sometimes cause new or hidden side effects. It's important to consider whether symptoms are due to the disease itself or the medications being used to treat it.
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