The importance of sharing

Replies
15
Views
449
Rodr24
Sep 20, 2024 4:09 pm

Be sure you tell your doctor, your stoma nurse, and all others about Meet an Ostomate!

My doctor has been doing GI surgery for decades and had never heard of MaO. He asked for more information, had his nurses take notes about it, all so he can give his patients a great resource for information, support, and a sense of community.

My stoma nurse had never heard of it. No one I've talked to in the Intestinal Surgery group had ever heard of it. I'm spreading the word everywhere. 

I found this amazing resource quite unexpectedly, as I didn't know it existed and was just looking for information on the internet about my ostomy.

I encourage each of you to be sure to tell all of your ostomy-related medical professionals about MaO. Don't assume they know about it unless they are the ones who told you about it. All ostomates need this amazing resource. 

Beachboy
Sep 20, 2024 4:13 pm

Good points.  I found this site by accident.  

Gray Logo for MeetAnOstoMate

Why Join MeetAnOstoMate?

First off, this is a pretty cool site with 36,000 members who truly understand you.

It's not all about ostomy. We talk about everything.

Many come here for advice or to give advice, others have found good friends, and some have even found love. Most importantly, people here are honest and genuinely care.

🛑 Privacy is very important - we have many features that are only visible to members, ensuring a safe and secure environment for you to share and connect.

Create an account and you will be amazed by the warmth of this community.

xnine
Sep 20, 2024 4:38 pm

Write a review under Collections.

AlexT
Sep 20, 2024 5:17 pm

My stoma/wocn nurse gave me a sheet of paper with all kinds of ostomy related sites on it, MAO was one of them. 

Morning glory
Sep 21, 2024 6:49 am

You are right, Rod. Most doctors and nurses don't know about the site. The word does need to get out more. You do need to do a review.

 

Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister

Play
Marjatta
Sep 21, 2024 10:02 am

I was one of the lucky ones. My stoma nurse referred me to this site, saying it would be a valuable resource for me during my healing (of body and mind) and my ongoing journey living with an ileostomy. I'm so glad she did!

The collective experience of these members is priceless. Not only do I come here to get my practical questions answered, I also keep coming back for the feeling of "normalcy" I get with this group. Being here has fast-forwarded my ability to cope in a positive way with "life after stoma."

M
xo 

Rodr24
Sep 21, 2024 12:07 pm
Reply to Morning glory

I went to the Reviews page, I'm able to read them all, but don't see a way to post one. When I pick the "New Topic" link, a Review topic doesn't show. I tried both with the App and the Web Page.

If you can point me to the right button to press, I'm all over leaving a fantastic review. 

xnine
Sep 21, 2024 1:30 pm

I do not see it either. Try ‘contact us’. It is at the bottom of the home page, scroll down.

Morning glory
Sep 21, 2024 4:39 pm
Reply to Rodr24

Rod, contact administration. I have received mine automatically.

🇦🇺 Jo
Sep 22, 2024 12:58 am
Reply to Rodr24

I think you need to be a paying member to post a review.

Doe1mama
Sep 22, 2024 1:56 pm

It was my husband's ostomy nurse who told us about it. She said we know some tricks and how to care for an ostomy patient, but these people are living it.

honeygirl
Sep 22, 2024 3:59 pm

I'm about to share this site with someone who is about to enter the ostomy world. I have directed her to Ostomy Canada for some initial information and meet with her next week for a Q and A. 

 

I wish someone would have told me years ago about MAO.  It's been a  lifesaver for me.  And I still visit the site to this day.

Bluesky
Sep 22, 2024 4:32 pm

There are also some support groups on Facebook. I found those very helpful as well. Lots of good helpful information posted, as well as support for the situations we sometimes have to deal with

rlevineia
Sep 22, 2024 5:03 pm

I found this site by searching for help. My local UOAA group never heard of MaO. It's not listed on the UOAA website, either.

rlevineia
Sep 22, 2024 5:05 pm
Reply to 🇦🇺 Jo

I found this site by searching for help. My local UOAA group never heard of MaO. It's not listed on the UOAA website, either.

WhirledPeas
Sep 22, 2024 6:38 pm

Nearly three years ago, I had emergency surgery (it's permanent) and no resources at all were suggested. Doing my own research soon after, I found MaO online. I haven't been on much in the last year, but what a great resource it has proved to be. Yes, I shared the info with my nurses at the hospital. A few knew of it, but most did not.