The importance of sharing

Replies
15
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733
Rodr24
Sep 20, 2024 4:09 pm

Be sure you tell your doctor, your stoma nurse, and all others about Meet an Ostomate!

My doctor has been doing GI surgery for decades and had never heard of MaO. He asked for more information, had his nurses take notes about it, all so he can give his patients a great resource for information, support, and a sense of community.

My stoma nurse had never heard of it. No one I've talked to in the Intestinal Surgery group had ever heard of it. I'm spreading the word everywhere. 

I found this amazing resource quite unexpectedly, as I didn't know it existed and was just looking for information on the internet about my ostomy.

I encourage each of you to be sure to tell all of your ostomy-related medical professionals about MaO. Don't assume they know about it unless they are the ones who told you about it. All ostomates need this amazing resource. 

Beachboy
Sep 20, 2024 4:13 pm

Good points.  I found this site by accident.  

xnine
Sep 20, 2024 4:38 pm

Write a review under Collections.

Gray Logo for MeetAnOstoMate

Hugo

This site has been a blessing for me in learning how to cope with and navigate this journey as an ostomate. I have a colostomy as a result of a perforation in my colon since May of this year. I don't know yet if it will be permanent or reversible. The people on here have provided me with so much advice and information about living with an ostomy that I don't think I could get anywhere else. You all have given me hope and a place to come to for support. I still struggle with acceptance, but know that it will come if I am patient. Patience has never been my strong suit! Also, I love all the humor, although it really pissed me off when I first came on here. Thanks to all of you.

AlexT
Sep 20, 2024 5:17 pm

My stoma/wocn nurse gave me a sheet of paper with all kinds of ostomy related sites on it, MAO was one of them. 

Morning glory
Sep 21, 2024 6:49 am

You are right, Rod. Most doctors and nurses don't know about the site. The word does need to get out more. You do need to do a review.

 

Avoiding Ostomy Bag Leaking | Managing Ostomy Leaks with LeeAnne Hayden

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Marjatta
Sep 21, 2024 10:02 am
Very helpful

I was one of the lucky ones. My stoma nurse referred me to this site, saying it would be a valuable resource for me during my healing (of body and mind) and my ongoing journey living with an ileostomy. I'm so glad she did!

The collective experience of these members is priceless. Not only do I come here to get my practical questions answered, I also keep coming back for the feeling of "normalcy" I get with this group. Being here has fast-forwarded my ability to cope in a positive way with "life after stoma."

M
xo 

Rodr24
Sep 21, 2024 12:07 pm

I went to the Reviews page, I'm able to read them all, but don't see a way to post one. When I pick the "New Topic" link, a Review topic doesn't show. I tried both with the App and the Web Page.

If you can point me to the right button to press, I'm all over leaving a fantastic review. 

xnine
Sep 21, 2024 1:30 pm

I do not see it either. Try ‘contact us’. It is at the bottom of the home page, scroll down.

Morning glory
Sep 21, 2024 4:39 pm

Rod, contact administration. I have received mine automatically.

Past Member
Sep 22, 2024 12:58 am

I think you need to be a paying member to post a review.

Doe1mama
Sep 22, 2024 1:56 pm

It was my husband's ostomy nurse who told us about it. She said we know some tricks and how to care for an ostomy patient, but these people are living it.

honeygirl
Sep 22, 2024 3:59 pm

I'm about to share this site with someone who is about to enter the ostomy world. I have directed her to Ostomy Canada for some initial information and meet with her next week for a Q and A. 

 

I wish someone would have told me years ago about MAO.  It's been a  lifesaver for me.  And I still visit the site to this day.

Bluesky
Sep 22, 2024 4:32 pm

There are also some support groups on Facebook. I found those very helpful as well. Lots of good helpful information posted, as well as support for the situations we sometimes have to deal with

rlevineia
Sep 22, 2024 5:03 pm

I found this site by searching for help. My local UOAA group never heard of MaO. It's not listed on the UOAA website, either.

rlevineia
Sep 22, 2024 5:05 pm

I found this site by searching for help. My local UOAA group never heard of MaO. It's not listed on the UOAA website, either.

WhirledPeas
Sep 22, 2024 6:38 pm

Nearly three years ago, I had emergency surgery (it's permanent) and no resources at all were suggested. Doing my own research soon after, I found MaO online. I haven't been on much in the last year, but what a great resource it has proved to be. Yes, I shared the info with my nurses at the hospital. A few knew of it, but most did not.