Managing High Ileostomy Output and Activity Impact

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Paolo Joe
Nov 17, 2024 9:50 pm

Hello, my stoma is 2 months and still a battle to regulate including 2 hospitalisations for dehydration then malnutrition. It was calmer then suddenly peaked again - 2 days of 1.5plus output and about 400 ml urine only. The only new thing in the last couple days I can think of is I’ve been out and about in the car etc. Could activity trigger high output? 

w30bob
Nov 17, 2024 11:45 pm

Hi PJ,

Activity doesn't normally factor into output volume, but your bowels are more active when you're not sleeping, and stress can be a trigger for higher output. Honestly, so little is known about ostomates that I wouldn't say activity couldn't influence output... but I haven't seen that myself.

If you're suffering from both malnutrition and dehydration, I've got to ask what information you were given about your ileostomy when you were discharged from the hospital? I need to know some things to help you, like why you were given an ileostomy, did it completely correct the problem, are you taking medications for other issues, are you taking any motility medications... what's your diet like, and what and how much do you drink? Let's start there.

;O)

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warrior
Nov 17, 2024 11:47 pm

Welcome.

At 2 months, your body is all messed up trying to understand what happened and adjust. Actively doesn't affect output. Eating and drinking do, which you admitted are not on your daily menu by saying you already suffered from dehydration and malnutrition... Dude, you need a dietitian that knows about stomas. Quickly.

You are off to a bad start so far.

Like many here, we are not informed in the "after."

Get informed. This site has tons of info. Use the icon bar above.

If you get too dehydrated constantly, say goodbye to your kidneys and... uh... your life.

Recently, 3 members here were diagnosed with chronic kidney disease (CKD).

They were never told this could develop. Not trying to scare you, no, just informing you to ask your doctor about this "after" situation. You will get the info you need so this won't happen hopefully.

Educate yourself. Be your own advocate. Check in with us with whatever you hear on the outside.

Bulking up, proper fluids, eating properly, seeing a doctor or stoma nurse regularly.

This is the new normal for us.

Good luck. Keep us posted. 👍

 

 

 

Paolo Joe
Nov 18, 2024 10:42 am
Reply to w30bob

Thanks for your message. An ileostomy was given during surgery, which was to remove cancer but couldn't be completed because it had spread more than expected. Half of my colon, some of my ileum (more than 2 meters left), appendix, and half of my peritoneum were removed. I need to start chemotherapy soon. I'm not dehydrated or malnourished now, as the hospital provided solutions. I'm on high doses of loperamide and codeine, plus anti-nausea medication. I'm eating oatmeal for breakfast, a banana, things like pasta or rice and fish for lunch, and maybe meat and carrots, mash for dinner. I'm trying to take Ensure for weight gain, and I'm on oral solutions to combat dehydration.

Paolo Joe
Nov 18, 2024 10:43 am
Reply to warrior

Thank you! Trying very hard to get educated! It’s been a serious journey. 

 

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Paolo Joe
Nov 18, 2024 10:45 am

This is hugely helpful. Thank you! I explained my context in one of the other comments. Your lists are great, and trying to reduce quantity at each meal / will try that too. Plus applesauce - today will try that. Thank you