Hello everyone! I just joined this group and am happy to be here. My ostomy journey started in March of 2022 when dx with stage 3 rectal cancer. I had an ileostomy at that time which was very challenging for the first several months! Convex wafers were the game changer for me! After 1 1/2 years of trying to have a reversal several times, I was able to have it done in Aug. of 2023. I then had an issue with LARS which was no picnic but I was doing my best until July of 2024 when I developed a rectovaginal fistula. Yup! It’s as bad as it sounds! Another surgery for permanent colostomy in August of 2024. When I had my ileostomy, I never took a tub bath which I love. Do you all take baths? How long can you stay in the water? Does your wafer lift on the edges? How warm can the water be? We also have a pool and want to start enjoying that again next summer! Any ideas and input appreciated!! Sorry for the long entry! It’s been a long 2 1/2 yrs!!! 😩

Why Join MeetAnOstoMate?
We are the largest community where over 40,000 ostomates, ages 18 and up, share tips and experiences in real time.
But, it's not all about ostomy. We talk about everything.
Many come here for advice, others find lasting friendships, and some have even found love.
🔒 Privacy is very important - your profile is not visible to the outside world.
over 40,000 members
Advertisement
Hollister
Talking about having an ostomy can be uncomfortable for most people. Still, it's something you can't always avoid.
Learn about some strategies that can make it easier to talk about your stoma.
Learn about some strategies that can make it easier to talk about your stoma.
Advertisement
Hollister
We conducted a survey to better understand the impact that living with an ostomy has on sleep.
Learn the results of our ostomy sleep survey.
Learn the results of our ostomy sleep survey.