Hello everyone! I just joined this group and am happy to be here. My ostomy journey started in March of 2022 when dx with stage 3 rectal cancer. I had an ileostomy at that time which was very challenging for the first several months! Convex wafers were the game changer for me! After 1 1/2 years of trying to have a reversal several times, I was able to have it done in Aug. of 2023. I then had an issue with LARS which was no picnic but I was doing my best until July of 2024 when I developed a rectovaginal fistula. Yup! It’s as bad as it sounds! Another surgery for permanent colostomy in August of 2024. When I had my ileostomy, I never took a tub bath which I love. Do you all take baths? How long can you stay in the water? Does your wafer lift on the edges? How warm can the water be? We also have a pool and want to start enjoying that again next summer! Any ideas and input appreciated!! Sorry for the long entry! It’s been a long 2 1/2 yrs!!! 😩

This is a remarkable community of 40,884 members.
You will get real advice from fellow ostomates who truly understand you - things you won't find in the books.
And it's not all about ostomy - there is friendship and relationships too.
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Marjatta
This group has been my go-to during my loneliest hours whenever I've had a "bag blowout" at 3am and there was no one else in the world to talk to.
Because it's a global community, there's always someone here to lend an ear, provide advice, and just hold my hand if that's all I need.
Sure, there's also a lot of camaraderie, fun topics, and laughs, but the main reason I come here is for the total acceptance I get from the members. No one else on the planet could possibly "get" what I'm going through, not even my loving husband or supportive family.
The "Meet an Ostomate" forum is definitely a one-of-a-kind family, which I am very proud to belong to.
M
xo
Learn more about contraception or family planning methods with an ostomy.
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