Dealing with Itchy Skin Around My Stoma

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447
Smnard
Dec 05, 2024 4:20 am

 


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Ok. So I thought it was getting better. I am so itchy at the bottom of my stoma. So itchy I wish I could take a fork to it. 

Someone had suggested using colloidal silver spray to help my skin. I believe that is what caused the rash near my belly button. So thats a no go. I'll stick to the calamine lotion for now. 

I'm worried if I use antifungal powder it will keep the barrier ring from adhering to my skin. Not sure what else to do. Is the itching normal because of healing? 

What the hell is this weird bubble on the side?!

Why does this thing cause me such anxiety

🥴

warrior
Dec 05, 2024 4:35 am

Your anxiety is well placed. It's new. You can't control it...or rather trying to control it makes you curse.

Ever train a puppy to potty? Trying to get it to poop on that pad?

Yeah...patience.

Your skin looks damn good. But I swear I see two stoma spuds. Like you said, what the hell is this bubble?

Indeed. What the hell is that?

As you know, whatever powder you put on or under that thing, you're going to need a protective spray. That...upon drying will give you your adhesion.

Ha ha. In the beginning, I was doing it opposite. Spray...then powder! 🤦‍♂️🤦‍♂️😲 then wafer or flange. Always protect if you can. The last step...before applying your appliance.

Posted by: Karen & Stella
Fay,

I am one of those few people who still have a lot of output at night. However, I suffer from short gut syndrome after seven bowel surgeries that led to the loss of much of my small intestine as well as my large intestine from the initial bowel cancer surgery. It does get better over time as your system adjusts, but an ileostomy can be a challenging adjustment. It's important to connect with a good Enterostomal Nurse - ET nurses who can help you problem-solve over time. It's been five years since my initial surgery, and I had a great visit with a new ET nurse in December. He really helped me with the problem of high output at night. I had been getting up every 90-120 minutes to empty my high output bag because of filling. If I slept for three hours without emptying, I would have problems. My ET nurse helped my husband and me make a nighttime collection system using a Rubbermaid juice container with a handle and my old CPAP hose. This is connected to one of my two-piece high output bags and allows for continual drainage. It isn't pretty, but it has been a real lifesaver. I guess the real message I want to share is to stick with it, find a nurse who you can work with, and together you will find solutions to whatever challenges you face. This website is also an important support for me and others. There is nothing you will go through that others haven't already faced and figured out. There is so much wisdom here. Read the materials they've put together for newbies. There are a lot of great suggestions to use. I hope things get better quickly for you.
Karen
Past Member
Dec 05, 2024 5:05 am

Warrior anyway you can message me please

AlexT
Dec 05, 2024 5:34 am

I'm not an advocate of the stuff unless your skin is irritated (which yours seems to be), but do you use a barrier spray or wipe? Also, those stitches can itch like crazy as things heal.

Past Member
Dec 05, 2024 5:47 am

Are you talking about that bubble around the stitch? That's normal. I had one just like that with my loop ileostomy. It's from the stitch. And Alex T is correct; those stitches itch. It could also be your skin getting used to the wafer, and a combination of both.

 

My Ostomy Journey: Bruce | Hollister

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Smnard
Dec 05, 2024 12:06 pm

I just keep pulling my hair questioning what I'm doing wrong lol

Smnard
Dec 05, 2024 12:07 pm

I was hoping it was the stitches!

Smnard
Dec 05, 2024 12:07 pm

Thank you. Everything makes me panic right now. 

Smnard
Dec 05, 2024 12:09 pm

I do have 2 spuds... I believe. Stacked. The surgeon met with me on Monday and said next year this time we will remove my colon and close up shop. For now, the bottom spud is keeping my colon alive? I don't know. Don't quote me.

Past Member
Dec 05, 2024 2:53 pm

Question: If the doctor is going to remove your colon, why didn't he remove it now instead of waiting a year?

warrior
Dec 05, 2024 7:22 pm

Well...pulling your hair out...ain't going to change your stoma size...so stop pulling your hair 😄😆.

Give yourself time. There are no quick answers or easy ways other than time. Experiment. Get some advice...try this or that. Just don't go bald!

warrior
Dec 05, 2024 7:27 pm

As Arnold Horshack said, "Oh oh oh... I know, I know... may I?"

If her doctor was thinking like mine, he was going to reconnect the small intestine to the stump.

It was Plan B... Part 2. Because at emergency surgery, they just get you fixed without further ado.

Perhaps the same thing in her case too.

Kept an option open, I would think.

 

Smnard
Dec 05, 2024 7:42 pm

Because my issue was complex, he wanted to make sure that this ileostomy worked before he removed my colon. So far, it's working beautifully.

Smnard
Dec 05, 2024 7:43 pm

Mostly correct!!

warrior
Dec 05, 2024 7:50 pm

I can't imagine an ileo not working though, unless more severe issues are preexisting. I'm glad it works for you; it's coming along.

 

SusanT
Dec 05, 2024 7:56 pm

Shamrock's suggestion about athlete's foot powder is a good one. I tried this and it is helping with the itchy skin issues I was having. But it isn't an overnight fix. 

Past Member
Dec 06, 2024 3:32 pm

Gotcha...

vanestag
Oct 11, 2025 3:37 pm

When I change my barrier, I have the same issue! The skin looks good, just itches so bad. I never thought about using a fork, haha! But I do scratch the heck out of it; it's always in the same area. I don't have any leakage, so it's not caused by that. Once I get my new barrier on, the itch subsides. But boy, do I scratch the hell out of it!