Issues with Barrier Rings Turtlenecking in Ostomy Appliances

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Missb
Jan 13, 2025 1:45 am

I really like this place; everyone is so helpful. I have a question: when I change my appliances, I of course clean the area and let it dry, but the problem I am having is after I put the barrier ring on, then the appliances. I use a one-piece, and after my body warms the wax ring, it turtlenecks up into the pouch. Is this normal, or am I doing something wrong? I do cut the wafer a tad larger than the stoma because you don't want it tight up to the stoma. Does anyone have any solutions?

warrior
Jan 13, 2025 2:26 am

Hi, yes, this place is very helpful for a number of reasons.

1. Being quick to reply.

2. Separating fact from fiction.

I like it here.

I'm an ileo. I use a 2-piece system. I put an O-ring barrier behind the flange first - Adapt CeraRing - then press it into the bag adhesive area, then place it over the stoma.

Sometimes I get that turtle neck. It's okay for me because that stoma breathes. So for me, it doesn't matter. Mine is tight, though. The wafer is flush against the stoma perimeter.

No issues doing this for myself. The alien spuds do flex; it's ugly head expands, retracts.

Just dying for attention, that little sucker.

You should be fine. No leaks, right? Good wear time?

Posted by: Nini4

Well,  I  hit the two year mark. I went back and read my posts from when I first found this site. I was very fortunate in that I stumbled upon it only 4 weeks post op. I have said many times that this community really saved me. The first 2 weeks after my surgery I shut down completely. It wasn't until about the 3rd week that my son came in to my room, flicked on the light and told me I was going to have to get back to living because I was scaring him. I had fallen into such a depression.  He  ticked me off,  but it also made me stop and think- what was I going to do? Feel sorry for myself and sulk, or be grateful I was alive. 

I've re-read my journals from that time and it was after my son kicked my butt, so to speak, I took an honest inventory and had to dig deeper than I've ever had to. I mean, I had survived a pretty nasty divorce, after a pretty crappy marriage and that was tough. But this was different. I felt like I was now a handicapped person who would be limited in their life and be looked at as a freak. My mental state was precarious, at best. 

But then I found this site. I just lurked a bit before posting. I read so many of the other stories and I started to see just how full my life can be, I was not handicapped,  and certainly not a freak! The stories of survival, the sense of humor, the support and compassion was inspiring.  It was then I made myself get out of the dark, and get my sh*t together.  

Not all rainbows and sunshine at first, hardly! But with grace from myself - to myself, and the kindness and willingness of the folks here to be supportive, non judgemental and openly share intimate details about their life circumstances,  l not only survived but thrived. 

I think of all the years I had suffered with such extreme pain, barely functioning,  and the many hospital stays and how that is all behind me now.  (All fingers, toes, and legs crossed that I never have to go near a hospital for myself ever again. I think I'd rather have a fork stuck in my eye. I loathe every about them.)  

So, to everyone who has been a part of this journey with me, to say thank you is not enough. I'm forever grateful to know you all.  My Angels, each one of you. 

 And as the Grateful Dead famously said,

"what a long strange trip it's been!"

Im so happy I'm tripping with you all.


Beachboy
Jan 13, 2025 2:27 am

It's called "Turtle Necking." Like a turtleneck shirt.

My barrier ring does the same. For me, I want that. It helps seal around the stoma. Sometimes small pieces of the ring break off, causing me no problems.

Missb
Jan 13, 2025 2:38 am

How can you get it cut so perfectly? Are you using moldable two-piece? I thought about changing to that kind because all you do is roll it back and then it rolls back out to the stoma. I am just waiting since two weeks ago it was moved up, over, and pulled out. It was under the skin the first time, now it's better, but I have to wait until it all settles back down in size to order them.

warrior
Jan 13, 2025 3:02 am

Precut. Moldable.

For me, it works best. I can't use scissors. Arthritis in thumbs. But I have been using this two-piece for years. Mio Sensure Click. Game changer flange makes sense. 5 fingers, not 4 corners.

When I apply the entire appliance, I go to one side first, then slowly pull it over to the other side. Fits like a glove. A bit tight, but I know it will decrease in size.

 

My Ostomy Journey: April | Hollister

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Past Member
Jan 13, 2025 4:11 am

Hi there, I cut my wafer to fit the size and shape of my stoma since day one, with no gaps or skin showing. That will prevent your skin from getting eaten away, which hurts something fierce. It could be the type of ring you're using. The Coloplast Brava ring would swell crazily on me, and I won't tell you the rest because I don't want to scare you. But I use the Cera ring by Hollister, and I don't have the swelling problems with the ring.

warrior
Jan 13, 2025 8:36 am

Ha ha. Your stoma is a horn dog. It sees more action than I do socially. 😆

Axl
Jan 13, 2025 8:41 am

Hello Missb

You haven't mentioned if this is causing you any trouble. You have probably noticed the turtle neck returns to its normal shape after a short period, and this is normal. If this causes you no problems, then you are doing it right.

SusanT
Jan 13, 2025 11:37 am

I get this swelling and "turtlenecking" on both my stomas. If there is any space at all, the ring moves into that space which is part of how the rings work to prevent leaks. 

I use precuts because peripheral neuropathy prevents me from cutting my own. My colostomy is distinctly oval in shape so I count on that swelling effect to provide a good seal. 

Missb
Jan 17, 2025 4:09 pm

Thank you all for the information. I must be doing it right, and I think I am going with the moldable because my stoma isn't quite round, and I feel I will get a good fit with this. You never know; it could be the perfect thing for me. Like you all say, we are all different. Keep trying until it works and feels good for you.