Does Stoma Size Change with Weight Gain After Surgery?

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313
Mimipark
Jul 15, 2025 4:24 pm

As you gain your pre-surgery weight back? I lost about 10 pounds before my surgery because of being so ill, and then on clear liquids and not having an appetite. My appetite has improved, about back to normal. My ostomy surgery (I have a colostomy) was the first week of April. I have now gone back to my "normal" weight.

I know your stoma shrinks as you heal, and mine was down to an odd shape between 31mm and 35mm. Now I am having to go up to a 38 to get the correct fit. I just wanted to ask if that was to be expected. Thanks.

infinitycastle52777
Jul 15, 2025 5:07 pm
Very helpful

Stomas do change size and shape. Often, when they are active, they get bigger, and when inactive, they get smaller. But it is also true that as you heal, your stoma is settling on the size and shape it is going to be. So be patient with it, and it will settle down to the size it is going to be. It doesn't hurt to cut the wafer a little bigger. Just be sure you get the proper fit without strangling the poor little guy.

Posted by: iMacG5

About seven years ago, just about every aspect of my life was ostomy related. From the moment I was told an ostomy might be needed until some months down the road I existed as a person afflicted with a colostomy. I feared someone other than my immediate family might find out I had a bag. Ugh! What could be worse? Suppose it filled real fast when I was out with no place to hide and take care of myself. God forbid should it leak in church! Suppose I roll over on it in bed. I was a lesser creature, destined to a life of emotional anguish and physical routines different from most of the rest of the world. I felt like a freak. Then I found folks like you guys here, read your stuff, really “listened” to what you had to say and I began looking at things differently. We know perception is everything and I began to understand how good things were relative to what they could’ve been. So many folks had it so much worse than I did. That didn’t make my discomfort go away but it exposed how fortunate I was to be dealing with my stuff and not their’s. I felt a little guilt, maybe selfishness but quickly forgave myself by understanding I just wasn’t smart enough to fix my feelings. Then, I wonder what smarts have to do with feelings. My perception was warped so my perspective toward my existence was warped.
I learned over the last few years with the help of lots of folks right here at MAO that I could be better at living just by accepting some facts. It is what it is and so what? It’s not the worst thing to happen to a person.
I think everything is, in some way, related to everything else. I just put the ostomy thing in the back seat and drive forward.
Respectfully,
Mike

grate
Jul 15, 2025 5:14 pm
Very helpful

That sounds pretty normal; mine changed too after I started eating better and gained some weight back. It got smaller at first during healing, then a little bigger later on, kind of like what you're saying. I think it's just your body settling and adjusting if your stomach area fills out again. As long as you're getting a good fit with the wafer and not cutting it too tight, you should be fine.

Mimipark
Jul 15, 2025 6:15 pm

Thank you so much for your reply. It makes me feel a bit more comfortable with the change. Sometimes I think I am overcautious still with how I am cutting the wafer and measuring, and then trimming, and measuring... So far, I have been doing okay; it just takes me a while.

Thanks again!

Mimipark
Jul 15, 2025 6:17 pm

Thank you so much for your reply. It makes me feel better being able to ask the group and have someone who has experienced this reply. It makes me feel better. Yes, I've been doing well with a good fit. I just think I'm too fussy yet, and it takes me a while because I cut, and measure, and cut a little more, and measure.....

Thanks again.

 

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Ben38
Jul 15, 2025 6:17 pm
Very helpful

Yes, it is normal, and it's recommended by nurses to measure our stomas every month. They can change shape and size over time, as mine has often over the last 30 years. When you first have a stoma, they usually get smaller, but not always. Then, as time goes by, they usually get bigger, say over the next 20 to 30 years.

Mimipark
Jul 15, 2025 6:19 pm

Thank you so much for your reply. I actually measure every change. I guess I'm still too new; I'm afraid of wasting a wafer if I don't cut it just right. I'm getting better; I'm just fussy.

It's good to know I have this group to come to to ask such a question, and that there are others here who will answer.

Thanks again.

AlexT
Jul 15, 2025 6:20 pm
Very helpful

Yep, it can change.

Mimipark
Jul 15, 2025 6:21 pm

Thank you. I appreciate the reply.

Morning glory
Jul 15, 2025 7:05 pm
Very helpful

Perfectly normal. You are going to be fine.

infinitycastle52777
Jul 15, 2025 7:46 pm
Very helpful

It's okay that it takes you a while. There is no rush. Take your time and get it just right for you.