So I'm still pretty new to terminology and such. Back in March of 2024, after a year of my ileostomy, I saw a surgeon at Emory. The original doctor wasn't able to create a J pouch during my surgery in January 2023. After talking with the surgeon at Emory, we both decided not to try again since my quality of life already was leaps and bounds better than when I had UC. He ended up removing the rectal stump and performing a mucosectomy. I keep seeing people getting the Barbie Butt surgery and was wondering the difference between that and what I had done. I'm thrilled with what I had and not looking at the Barbie Butt surgery, just curious. They removed the mucosa, but I still have my sphincter. The hole is completely sewn off. The recovery wasn't too rough, but for a couple of weeks, it was just uncomfortable and I couldn't sit, so I laid on the sofa or in bed. Now that it's been over a year, I'd say I feel like I did before I ever had UC.
Kudos to your doctors for not pushing a j-pouch, especially if you're happy with your ostomy. Fewer surgeries, less scar tissue, and less time away from work. I wish I hadn't been “encouraged” to get one, but I wound up with a permanent ileo and got my life and health back. I have a Barbie butt, was also sore for a month or two, and then healed well. I'm glad you healed easily, too.
This is a remarkable community of 40,872 members.
You will get real advice from fellow ostomates who truly understand you - things you won't find in the books.
And it's not all about ostomy - there is friendship and relationships too.
Privacy is very important - your profile is not visible to the outside world.
Marjatta
This group has been my go-to during my loneliest hours whenever I've had a "bag blowout" at 3am and there was no one else in the world to talk to.
Because it's a global community, there's always someone here to lend an ear, provide advice, and just hold my hand if that's all I need.
Sure, there's also a lot of camaraderie, fun topics, and laughs, but the main reason I come here is for the total acceptance I get from the members. No one else on the planet could possibly "get" what I'm going through, not even my loving husband or supportive family.
The "Meet an Ostomate" forum is definitely a one-of-a-kind family, which I am very proud to belong to.
M
xo
Glad to hear you're doing well! My doctor at Emory was phenomenal. I did a lot of research on whom I wanted to see, so when the VA sent the referral, I knew I would be in good hands. I haven't had a doctor like him in a long time, who truly has their patient's best interest in mind. Question about the Barbie butt, does it affect you when you squat down or during normal day-to-day activities?
Learn about what to expect during pregnancy.
G-Day SA,
I have a KEN Butt, and there is no problem bending or doing anything.
Regards, IGGIE
Emory is one of the best places. I am glad you are doing so well. Welcome to the site.
Avoiding Ostomy Bag Leaking | Managing Ostomy Leaks with LeeAnne Hayden
