Hi, I had an emergency ileostomy last October after being admitted in September with a bug. Due to getting 6 more bugs, a blood clot, and sepsis, I was in the hospital for nearly 5 months. I didn't eat and lost 4 stone, ending up on a feeding tube. I may have to have it redone; I'm waiting to see the surgeon on Thursday. The sides of my skin dip in, which is causing leaks and soreness. I have to use so many seals to keep my bag on safe and also have a bump that keeps appearing by the side of my stoma. Anyone got any ideas? Please 💕
Beccalou
Aug 10, 2025 8:04 pm
SusanT
Aug 11, 2025 1:32 am
I agree with the idea of talking to a stoma nurse.
In case that isn't possible or it just doesn't help, I would try paste to even out the surface and fill the dips. I'd still plan to use a barrier ring with your appliance. Select a wafer that isn't too rigid. I use Coloplast SenSura Mio, which seems very flexible to me.
But long term, they may need to move your stoma to a better location. That is not as big a surgery as the one that created your ileostomy.
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Hubz had a regular checkup with the oncologist on Friday (his numbers are improving), and as they were asking how he's feeling since surgery, they became curious about how he's doing so well with his ostomy, both physically and mentally. He credited doing research online, trying different things, and especially the support from this group. They were asking because they see so many patients struggling to adjust.
We described this group as folks with every kind of ostomy, some for days while others for decades, but all willing to share what's worked for them with the caveat that every individual is different.
We described the most valuable element as feeling like you're not alone in this. That really piqued their interest, and they wrote down the link. It seems they had a few people in mind that might benefit from the community and thanked us for telling them about it.
You know, we can't remember exactly who we learned about this group from, but we're grateful for it every day! Thank you all! 🌻
Panda85
Aug 11, 2025 11:59 am
It may be a granuloma that you are describing. I have had quite a few granulomas, and if this is what the lump is, you can have silver nitrate applied. Please speak to your stoma care nurse, who can do the application as an outpatient.
Hope this helps.
Panda85
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almelia
Aug 19, 2025 4:23 pm
I had a dip on one side from a previous surgery. I found Varimate Wedges really helpful. I dry my skin with a hairdryer (fold a couple of squares of loo paper into a lengthways strip to wrap around the stoma so you can then blow dry the 'crease.' Then add the wedge before any ring and wafer. They come in two sizes, and you can request samples from the link. I found the 'large' better for me.
https://peakmedical.co.uk/shop/varimate-wedges/