Colostomy Care Challenges During Hospital Stays

Replies
22
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436
dmjgatos
Aug 31, 2025 5:18 pm

Has anyone with a colostomy and using a Hollister two-piece had a hospital inpatient stay whereby it was necessary to have the appliance changed by a nurse?

Many times my bag and disc were changed by the nursing staff without success. The base was put on damp skin; therefore, it didn't stick, and by the time the nurse reached the door, it was lifting off. I am still in the hospital, but fortunately, I am now able to change my own appliance.

The whole situation was very distressing. Surely common sense should prevail - sticky surfaces will not adhere to damp skin!

Maried
Aug 31, 2025 5:37 pm

Doctors and nurses, unless they are experienced ostomy nurses, know very little about the maintenance of an ostomy, has been my experience.

ConnMan

I began my Urostomy life February 27th, 2023...a month and a half ago. I stumbled upon this site from another on Youtube and website called VeganOstomy and between that site and this one, most of my fear and worry of not having any answers other than calling the Dr's office recording menu and hoping to hear back in the next day or two for an answer to leaks, skin irritations etc, or just feeling alone and the "no one understands" thoughts I had to look forward to in my mind were all put to rest by these two websites and the community here at MaO!! I have been here for a few weeks now, and the help and support offered by the members here is just amazing!! The information and support is absolutely priceless for anyone recently out of their surgery and have tons of questions or had it for years...sit down...have a good read and you will see for yourself!!

w30bob
Aug 31, 2025 5:41 pm

'Common sense' and the word 'hospital' don't go together in my mind... but maybe that's just me. The ostomy world is still very foreign to most in the medical community, no matter what country. As always... you are your best advocate, whether in the hospital or elsewhere. But especially in a hospital. Get the heck out of there as soon as possible. I mean... what else could possibly go wrong?

;O)

eefyjig
Aug 31, 2025 5:49 pm

I'm sure there are some very good ostomy professionals, but truthfully, I've learned more on my own and from the good folks on here. I've also been helped by an ostomy nurse and had a leak before I reached my car. Dampness interfering with bag adhesion seems pretty basic 🤦‍♀️. I'm sorry you experienced that, but you're definitely not alone.

infinitycastle52777
Aug 31, 2025 6:37 pm
Very helpful

I am sure they just wanted to get it done and get out of there. Maybe they were not knowledgeable, and maybe they just didn't care. Who knows? But I am sorry you have had to go through this experience. Could you tell them that it won't stick to wet skin? So then they will know for future patients. I am glad you are able to change for yourself now, so you can do it the right way. When I was in the hospital, they put my bag on sideways, and I hated that because it meant that I couldn't empty it on my own. They had to come in with a bucket and empty the bag, and they were usually annoyed about it.

 

My Ostomy Journey: Bruce | Hollister

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Ben38
Aug 31, 2025 6:47 pm

Some of them don't listen to us when they don't have any experience with bags. When we say you need to do it like this, I've been very lucky myself. When I had surgery on my hand a few times, the nurses were really good at changing my bag. They even left me to teach student nurses how to change them.

SusanT
Aug 31, 2025 6:52 pm
Very helpful

When I had my ostomy surgery, it was in a large hospital. The ostomy nurses were great, the nurses on the specialized colorectal ward were great, and even the aides on that ward were great. They saw a lot of ostomies, and they knew what they were doing.

I was readmitted to the same hospital shortly after discharge with sepsis. For whatever reason, I was placed in the cardiac ICU... no one had any idea about the ostomy, and they weren't able to get the ostomy nurses to help. It was an unmitigated disaster. I couldn't even get them to hook up my urostomy to a night bag, which resulted in the bag overfilling when I slept and soaking everything, as well as dripping all over the floor. Then they failed to get a good fit with the wafer, resulting in a leak. Eventually, my husband came to visit and did the change properly. The colostomy bag did not get changed while I was there. It needed to be changed, but it did not happen.

I recently spent a few days in a regional hospital. They were smart enough to know what they didn't know. So they listened to me about hooking up a night bag. Fortunately, I was well enough to change my colostomy bag myself.

My advice: bring plenty of your own supplies and make sure a loved one knows how to change the bag in case you are too sick to do it yourself. An ostomy nurse will be able to change it, but don't count on there being one available. Standard nurses will vary based on individual experience, and a fair number of people have no common sense.

TerryLT
Aug 31, 2025 7:55 pm

Like Susan, my surgeries took place in a large hospital, with its own 'ostomy and wound care' section, so all the staff were knowledgeable, and ostomy nurses were on staff. I've since moved to a smaller community with a good hospital, but no specialists in ostomy care. I've had a couple of ER admissions, both for partial bowel obstructions that cleared themselves in time. The staff were all familiar with ostomies and seemed to be knowledgeable, but changing my appliance wasn't necessary. I agree that being prepared to do your own thing is the way to go. Of course, that's not always possible. Expecting to find common sense might also be a tall order!

Terry

warrior
Aug 31, 2025 11:00 pm

Many times while being in the hospital, I was asked by a nurse about changing the bag...

I'd simply say no. I got it. And footnote: bring your own supplies! The hospital has "bargain brands" that simply suck. I have denied those brands since I bring my own.

But if you're incapable of replacing the bag due to illness, stop them, educate them that what they are doing is wrong. Always get names and speak to the head nurse on staff.

You have to be your own advocate. Stand up. You have a right to deny them touching you. Get someone more experienced. 👍

IGGIE
Sep 01, 2025 1:42 am

I have a very good stoma nurse, and I have learned a lot from her. But in the beginning, I had some very uneducated ones and had to tell them to stop and show them how to do it.

IGGIE

Beachboy
Sep 01, 2025 2:02 am

Next morning after surgery, an ostomy nurse arrived to change the setup that was installed during surgery. She was an expert. Seeing my stoma for the first time was unnerving. But she was cheerful... popped on a new wafer/flange and bag. Told me... "No big deal."

Axl
Sep 01, 2025 9:38 am

Yea, unless they are very familiar they got no idea. A few hours after surgery flat on my back a nurse tried to empty my bag laying down, didn't go well. Had two new colorectal doctors, not surgeons, check on me the morning after another surgery, one wanted to see the stoma so they had a go at changing the bag, slapped it on eventually, then pressed down so hard on the bag to adhere it to my skin I nearly went through the roof.

warrior
Sep 01, 2025 1:31 pm

I remember after my surgical procedure in E.R. still under anesthesia, out cold, they were cleaning me up from surgery which was a hot mess. 

Someone tore..literally  tore off my appliance to clean area and replace it.

I know this, bc.. I said  ouch! 

Guess they added more anesthesia  after that ,  but I'm sure I surprised😳 the shitz out of THEM. 😆

eefyjig
Sep 01, 2025 1:54 pm

Wow!

ron in mich
Sep 01, 2025 2:03 pm

Hi all, nowadays most hospitals are so understaffed that the young nurses are constantly running. When I say young, I had three come in my room and ask if they could see my ileostomy. That's not a misprint, but the last time I was in the hospital and had resection, the surgeon did the bag changes and knew exactly what he was doing. The only thing I questioned him about was why he used an alcohol wipe around my stoma, and he said it dries the skin quicker.

TerryLT
Sep 01, 2025 7:53 pm

LOL! Sorry Axl, just picturing the nurse trying to empty your bag with you lying down!

Terry

Axl
Sep 01, 2025 10:48 pm

🤣

eefyjig
Sep 01, 2025 10:52 pm

Unbelievable! We really are at the mercy of these folks!

Beachboy
Sep 02, 2025 1:46 am

Someone could write a really excellent horror movie set in a suburban hospital.

I can imagine the movie trailer:

Dark room in a darkened hospital. Camera zooms in on a 5th-floor room..... Patient Warrior has been rendered comatose by anesthesia and the perfume of a cute nurse. As he gently snores, a shadow slides by in the darkness. Slowly his gown is lifted... higher... higher....... tension mounts. A gloved hand appears, then disappears. Reaches under his gown and tugs on something.... something connected to Warrior. It won't budge, but begins to grow!! Suddenly lights are ablaze, Warrior shakes awake... fear coursing across his face. He frantically looks around helplessly. But it's too late! Nurse practitioner Mortishia has done it again.... tried to empty his bag on his back!!! Oh, the humanity! Camera pulls back, music fades, and the voiceover starts: "Be afraid... very afraid. Coming soon to a theater near you... 'Night of the Clumsy Nurse's Aide.'

warrior
Sep 02, 2025 1:59 am

Can't wait for the movie! We can cast some members.

Any volunteers? 🙋

Wait a sec...

Who told you I snore?! Damn that Flabby! No secrets 🤫 safe with a loopy chick. 🤷‍♂️🤭

Beachboy
Sep 02, 2025 2:26 am

 and she begins to blab !!

warrior
Sep 02, 2025 2:55 am

Been there, done that. 🫣

Kyle
Sep 03, 2025 6:05 am

Sadly, not everyone is trained on how to do everything and may not really care. It sounds like you got stuck with people who shouldn't be caregivers. Glad you can take care of yourself now. I had stoma surgery on December 22, and they threw a lot of us out on December 24, and I had no idea how to change my appliance, and my skin got infected because the nurse didn't get to me for 8 days. The problem seems to be that there are not enough staff in many hospitals for a myriad of reasons.