Ok, venting. Explain to me why in the year 2025 supply companies cannot "fix" filter issues. They leak; I have tried more products than I can tell you, and they all leak. They do not keep smells in, they do not let air out, and they leak. Sorry, but I just had another night of washing bedclothes and everything else because of this. I know there are supposedly ones without filters, but my question remains the same. If their mother or father had to deal with this issue, someone would solve the problem. I have read other posts and know that some people use Scotch tape (I have used duct tape), but seriously, why? At first, I was very compliant and called the company and gave them the lot number, etc. It does not matter. Again, sorry. People always ask me what it's like to have an ileostomy, and my answer is always the same. It's not the ileostomy that's the issue; it's the products.
MeetAnOstoMate is a remarkable community of 41,407 members.
“I found real people, real humor, and answers I couldn’t get anywhere else.”
“The support here impressed my husband’s medical team - they plan to recommend it.”
“This community saved me when I thought I was a freak. Now I’m thriving.”
“Thank god for this site - I finally knew what to ask my surgeon.”
Yeah a year ago I wouldn't have known what to ask to find out I had a parastomal hernia. The only reason I knew about them is from this site. Thank goodness for this site. Otherwise I would still be clueless. If I hadn't though from stuff on here to ask my surgeon about having a hernia, then I would have never had the CT and I would have never known that she should have known about it a year ago.
Learn all about skin barrier extenders.
Learn about convexity and 4 myths surrounding it.


