I've had the bag a long time, and I've accepted it totally (apart from the odd snivelly moment), and it has never stopped me doing anything because I've been fortunate to be otherwise fit and well.
But
Apart from medical staff and my wife, nobody has ever seen it, and I have always preferred it that way.
When I played rugby, football, cricket, squash, swimming, etc., I was always discreet, and wore shorts in communal showers in order not to embarrass myself or others.
I always found this uncomfortable, as I had previously been fairly vain about my physique, and was a bit arrogant regarding other people's shyness.
I am now waffling.
What I would like to know is, do other people display their bags to strangers in these circumstances or in any other?
I am certainly not ashamed of my condition, but nor would I flaunt it.
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Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
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