Top Urostomy Continent Diversion Surgeons In The Usa

Spiritual Living

Jun 17, 2009 4:48 pm

I'm looking to get a continent diversion.  I was told by the urologists at Shands in Florida, that I'm too much of a risk because my kidneys only function at 45%.
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Then who in THE COUNTRY would be the best sugeon to go to?  Where do I look to research this information?  What doctors are known to perform this surgury on a frequent basis?

Does anyone know where I could get contact information & profiles on tese "Urinary Continent Diversion Specialists"?

Thanks for any information any one can provide!
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Sincerely,
Spiritual Living (Sunshine4U)

Whoa

Jun 18, 2009 7:39 pm

Spritual living

I don't know your medical history or what specific type of continent diversion you are looking for.

In general, the best place to look for a urologist who does a lot of continent urinary diversions would be a large academic medical center.  You should be able to pick up names of practicing urologists and specialists.  You could also look up oncology urologists, they would be doing more of these surgeries than anyone.

I don't know much about Florida.  Emory Universtiy /hospital (in Atlanta) is a large teaching facility, good reputation and maybe not too far for you.  You could google the staff, get a name and email them.

I am not sure of their specifice criteria.  Urinary tract infections are at high risk with some continent diversions and that may be your urologists concern.

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Posted by: freedancer

In both of my cases, I had no choice. It was surgery or be put 6 feet under! I thank God that He has been with me all these times. Without Him, I never would have known what to do and might not have gone to the hospital when I did. I don't know if you have had your surgery or not yet but I hope you will hang out on this website when you are done. I have learned a great deal through the people here and it is so great having others who have had the same thing done and been through what you are about to or have gone through. The only thing I have turned down is a reversal of the ileostomy. When the doctors did the emergency rebuilding of my original ileostomy this last February, I told them I did not want to go through this again. My doctor told me at that time that I was no longer a candidate for the reversal. In a way, I was very relieved. The last three years of my life have been a nightmare for me. I do not want to go through any of it again. If you wish to be rehooked up and they say you are a good choice for that, research it carefully. Every surgery I have ever had except for Old and New Maxine and the emergency surgery on my broken foot, I have spent weeks researching. I recently had my C5 C6 disk in my neck replaced with an artificial one. I went to my pre-op with 2 pages of questions for the doctor. I knew everything that they were going to do and could talk intelligently with them. I always try to research my adversaries! Don't cancel your surgery. It is nice not to have to suffer any longer with horrible pain. We all had to change a few things around when we had our surgeries but in the long run, most of us are glad we did it. I know I am. Good luck to you!

Mitch31

Jun 22, 2009 3:14 am

I had mine done at the Mayo Clinic in Pheonix Arizona. They have a clinic in Florida also.

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corncob

Jun 22, 2009 6:00 am

hey spiritual living:
I think Cleveland Clinic can help you. The website is www.clevelandclinic.org. This hospital has some of the best specialists and procedures in the world! I was there a couple of weeks ago for a consult regarding my periostomal hernia. I was very pleased with everything. I will be having surgery to fix the hernia (Hopefully in the next couple of months.) If you have any questions feel free to contact me. Good Luck!

Past Member

Sep 21, 2012 5:22 am

I highly recommend the following academic medical centers:

1) Duke University Medical Center in Durham, North Carolina

2) University of North Carolina Hospitals in Chapel Hill, NC

3) Wake Forest University Baptist Medical Center in Winston-Salem, NC

I had my Urostomy surgery performed @ Duke University in 2005, but as a healthcare professional, I will tell you that any of the above listed faciities are consistiently listed among the best facilities in the world for Urology and Urologic reconstructive surgery. They are all academic medical centers. I recommend that you seek a practitioner that is board-certified in their speciality.

My Ostomy Journey: Kimberly | Hollister

vanessavy

Sep 23, 2012 3:58 am

I believe almost everything should be done in a teaching/large medical facility these days after dealing with my diseases. I am going to say Cleveland Clinic or Mayo. I am going to CC next week to see the best pouch GI and hope to meet with a Urogynocologist as well.

Not sure where you are located the CC is worth the trip and they are the best.

Top Urostomy Continent Diversion Surgeons in the USA

My Ostomy Journey: Kimberly | Hollister