Dealing with a Recurrent Hernia Post-Urostomy

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Ocker
Apr 02, 2012 6:42 am
O.K.folks. I need a bit of advice/guidance/help,etc. I have an Urostomy - since Sept.2010 - for the usual reason, cancer, and the aftermath of the surgery was a nightmare ( but thats another story). I developed a large hernia in 2011, around the stoma, and this was operated on in Oct.2011. All was good until about a month age when the bloody thing came back.
It came back in the same place and the same, if not bigger, size. Have got some pain with it and a lot of discomfort. Have spoken to my local G.P. who is of the opinion I may have to grin and bear it. He suggested wearing a belt most of the time, a solution that does not sit right with me.
Will be seeing my Urologist in the next week or so for my check-up and will put the problem to him to see what can be done. However, am I just complaining about trivia and is this the way it usually goes with parastomal hernias? Do they keep coming back? Because if that is the case I am going to get really peed off!! (Not to mention downright despondent).
I know it has only been 6 months since the last op. but if I can get it fixed it would be good - or am I just peeing in the wind?
Pilgrim 0074Him
Apr 02, 2012 7:17 am
Ocker

Bud, first I am sorry you're dealing with this.  But I do believe there's a solution better than simply living with this hernia.  I'm no specialist, other than I have had my own ileostomy a while now, but as a nurse, thinking of the physiology involved, I can't help but believe there's a good solution, probably involving one additional surgery.  Can you do anything to tone up the rectus abdominals, say with stomach crunches BEFORE you get a very experienced surgeon to take another crack at it?  

Above and beyond that two cents' worth, I'm praying you find the patience you need to deal with this problem in the best, most efficient, yet most appropriate and durable way possible, and also that you have peace in your struggle.
Posted by: mild_mannered_super_hero

Hello and welcome to meet an ostomate. The site charges a fee only for Full Membership, you can still interact with members here via the forums and the public chat room with free membership. The site charges a fee since it has expenses ... as do all websites, people have to spend their time to run and maintain the site, buy bandwith, servers, and other things. I am a life member here, it cost me 56$....about the price of 1 cup of coffee a week for a year. I think that is a very small charge for such a big reward. In my opinion this site is the best ostomy-related web site on the net. I hope you will stick around awhile and see for yourself. I do not own or am I in any manner connected to this site except as a member. regards. mmsh

Pilgrim 0074Him
Apr 02, 2012 7:20 am
And please keep raising your cup.  Ask for the help you need (like you're doing here).  That's great what you're doing and keep your great sense of humor, too.  

Cheers!
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Ocker
Apr 02, 2012 11:39 am
Thanks Pilgrim. Not a bad idea about toning up the muscles, however, the hernia gets in the way at the moment although I do exercise a fair bit. Can't even cut my own bleedin toe nails at the moment cause it gets in the way!
skidder
Apr 05, 2012 2:12 am
Hey Ocker, I know the pain, discomfort and constant worrying you're going thru. In 2008 I was diagnosed with a parastomal hernia right above my ileostomy. I underwent a hernia repair with the "mesh" stuff. (felt like a flat tire in need of repair!") I have been a symptomatic since then with no residual side effects. That's one of the reasons I retired from Physical Therapy and am now doing Hospice Care. I disagree with your G.P. when he stated you may just need to grin and bear it. No, go to your Urologist and take his advice. Maybe if he doesn't know the answer/remedy, he can collaborate with your gastro man! Also, sometimes as with any hernia development, the type work/activity you do might have some bearing on recurrence. I just hope you get it properly taken care of and can be worry free. Peace
 

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