Colonoscopy Prep for Ileostomy - Concerns about GoLytely?

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ZaliBee
Jul 08, 2012 11:57 pm

I am having my first colonoscopy this week and I have an ileostomy. I don't understand why they have mailed me the GoLytely and pills to take after. I heard that someone with an ileo should never take laxatives.

Isn't it dangerous to drink a gallon of that vile demon liquid?

notexpectingthis
Jul 09, 2012 12:11 am

I think somebody at the doc's office goofed up! Think about it - colonoscopy goes up to the small intestine - not through it!!!! If you drink that vile demon liquid - you WILL get dehydrated!!!!! Think your prep is supposed to be two saline enemas the night before.

Posted by: iMacG5

About seven years ago, just about every aspect of my life was ostomy related. From the moment I was told an ostomy might be needed until some months down the road I existed as a person afflicted with a colostomy. I feared someone other than my immediate family might find out I had a bag. Ugh! What could be worse? Suppose it filled real fast when I was out with no place to hide and take care of myself. God forbid should it leak in church! Suppose I roll over on it in bed. I was a lesser creature, destined to a life of emotional anguish and physical routines different from most of the rest of the world. I felt like a freak. Then I found folks like you guys here, read your stuff, really “listened” to what you had to say and I began looking at things differently. We know perception is everything and I began to understand how good things were relative to what they could’ve been. So many folks had it so much worse than I did. That didn’t make my discomfort go away but it exposed how fortunate I was to be dealing with my stuff and not their’s. I felt a little guilt, maybe selfishness but quickly forgave myself by understanding I just wasn’t smart enough to fix my feelings. Then, I wonder what smarts have to do with feelings. My perception was warped so my perspective toward my existence was warped.
I learned over the last few years with the help of lots of folks right here at MAO that I could be better at living just by accepting some facts. It is what it is and so what? It’s not the worst thing to happen to a person.
I think everything is, in some way, related to everything else. I just put the ostomy thing in the back seat and drive forward.
Respectfully,
Mike

ZaliBee
Jul 09, 2012 12:14 am

I cannot take an enema, I have FAP and have had the colon, anus, rectum removal because of it. But, maybe you are right. I just do not know, I tried calling and spoke to some nurse but she kept insisting that I drink it, but something keeps telling me not to. LOL

bag_n_drag
Jul 09, 2012 12:16 am

I think not expecting this is right. I would definitely call the Doc's office for clarification.

Right before my reversal surgery, I had the same thing happen.....only I have no large intestine left and had an ileo! I went back in their offices and said "Uh....methinks we have a problem here!" Once I refreshed the front office's memory about me having NO COLON; they backed off.

I didn't even have to do the enemas...but then, again, you can't cleanse what ya ain't got!

Blessings!
Darla

ZaliBee
Jul 09, 2012 12:20 am

Thank you, guys, so much.

 

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ZaliBee
Jul 09, 2012 2:55 pm
I finally got ahold of my doctor in the GI clinic and she confirmed what the rest of you were saying. Evidently, she put in the correct orders, but since I have to go down to the Gainesville VA to have the procedure, they didn't actually look at my diagnosis, only that I needed a colonoscopy.

I did put in a complaint, however. I had informed them that I had an ileo and the clerks who answer phones at that facility didn't forward the question to a doctor or a GI nurse, they just answered the question themselves, which is dangerous. If I had been the sort of patient that did not question questionable procedures, they could have done serious harm. Especially since they sent the full prep kit and kept insisting that I take the pills, the GoLytely, and drink that fizzy stuff. (shudder)
ron in mich
Jul 09, 2012 3:41 pm

Hi Zalibee, any time I had to clean out, all I did was drink clear liquids like Gatorade or green tea, chicken bouillon, etc. And that was all I needed, no solid food. Ron

mooza
Jul 09, 2012 11:12 pm

Good one, Darla. But I did have some eww drink that went right through me. Oh, a barium 2 weeks ago, but it was some weird smelling kinda licorice taste. And yes, I was dehydrated very fast, but still, they found no problems. So I'm still waiting to find out why I had a nasty infection that had me sprawled out in the hospital for 4 days. Ugh. But can't you ask the doctor about us ileos? I have never had to drink the vile stuff when I had all my operations. You're right, no large bowel. Hmmm.

notexpectingthis
Jul 10, 2012 2:17 am

I am so glad you called them back that you made a complaint - just because you work in a medical environment does not mean you know what you are talking about or are educated to give a patient advice!!!! Kudos girl!!!!!

ZaliBee
Aug 21, 2012 10:22 pm

Thanks!

There were apologies all around when I showed up for my endoscopy (laughs). I can't even imagine what I would have felt like if I had drunk all of that GoLYTELY on top of the laxatives they had ordered like fools.

They did say that they were going to change how they managed such situations again, which is good. I would hate for someone else to receive that prep kit and not know that it would do them real harm.

ballpeen
Jul 22, 2013 2:30 am

Hi Zalibee, if you're concerned, why don't you call the clinic that's doing the colonoscopy and ask them why you have to do the preps? I did, and the doctor told me that I didn't have to prep because I was getting a colonoscopy. They sent the Go-Lightly and laxatives anyway. I didn't take them and all went well. Ask where they're going to put the slide scope. Good luck, Zali Ballpeen.