Living with a Urostomy for 37 Years: Insights and Tips

Hello all I'm new to this age but not new to my Urostomy I have had it for 37 yrs . I use convatec 2 piece system and don't have too much trouble . I usually have to change the wafer 1 or 2 imes a week if I'm lucky. Lately I ave been using some tape to help hold it seems to be helping I've had numerous surgeries and several kidney ston surgeries but I feel I'm pretty lucky no major problems Amy questions let me know jody

hi lobby.ive had my urostomy for nearly two years, caan i just ask if you have any discharge or leaking( not from the bag) but vagina? also its affected my bowel movements, i get so many relly burning sensations in my stomache and it travels up my arms as well, is frightening and awful,seems a bit better when ive passed a motion but all the same its a dreadful feeling, doctors cant seem to give me any answers to it.x

Hi Girlygirl, I have similar issues with the leaking but I have been told it is from surgical scaring, not pleasant and I have to wear liners everyday., part of my bowl was also cut out so I noe have to take medication to stop having the runs.  Alot of issues but were still around and I just make the most of what I have.

thanks gmb it really helps when someone knows what your talking about, what i dont like is the odour and the colour of it! and yet the urine in my actual bag is clear and not infected,  ive been told its probly a vaginal infection rather than a urine infection, either way,, i dont like it! lol