Hey, I know I haven't been on here in a long time, but I have recently got gastro and everything I do seems to make it worse. I'm not sleeping at night because I am scared that I will wake up to a leaking bag, and need to change all my sheets and wake my husband up, etc. I am still experiencing leaking bags throughout the day and in the last 24 hours I have needed to change it 7 times, with emptying every half hour or so. I am trying to find things to settle the acid down and the cramps I am getting. If anyone has experienced this, please let me know what you have done to help it. I'm almost at the point of going to the hospital as I am so weak...
Thanks
Brooke
wookie2005
Sep 12, 2012 5:51 am
Past Member
Sep 12, 2012 12:17 pm
Maybe if you're that weak, then a trip to the hospital becomes a must.
notexpectingthis
Sep 12, 2012 4:10 pm
Emptying the bag that often has got to get you dehydrated - it did me!!!!! Try Gatorade; it helped me a lot - I drank the G2 "rain".
I lost my bag several times throughout the day. Have you tried a Marlin bag with shallow convexity? This helped me a lot!! My skin was totally shredded from the bag falling off so many times.
Sinful is right - make that trip to the ER for hydration if you feel you need to. That is nothing to play around with. Get an appointment with a GOOD ostomy nurse.
Will keep you in my thoughts!
Melissa
MeetAnOstoMate is a remarkable community of 41,453 members.
“I mostly read and still feel like I belong.”
“Doctors took notes; they want others to find this website.”
“From midnight blowouts to big wins, there’s always a hand to hold.”
Posted by: mild_mannered_super_hero
Hello and welcome to meet an ostomate. The site charges a fee only for Full Membership, you can still interact with members here via the forums and the public chat room with free membership. The site charges a fee since it has expenses ... as do all websites, people have to spend their time to run and maintain the site, buy bandwith, servers, and other things. I am a life member here, it cost me 56$....about the price of 1 cup of coffee a week for a year. I think that is a very small charge for such a big reward. In my opinion this site is the best ostomy-related web site on the net. I hope you will stick around awhile and see for yourself. I do not own or am I in any manner connected to this site except as a member. regards. mmsh
Past Member
Sep 13, 2012 1:53 am
I had similar symptoms and ended up in the hospital four times after my ileostomy surgery for dehydration. I now take up to 18 Imodiums a day, and I drink Metamucil and have a prescription for a powder to drink to bulk up my output. I am just considered a "high output" patient, and I have to take very special care of myself. I also have an ostomy nurse, and when I was leaking as much as you are leaking, she finally measured my stoma over and over again, and it had shrunk. I have pre-cut appliances now because I could not cut the hole properly. I just kept leaking. It has finally toned down, but I could not have done these things without all the professional help I got. Try and get some help asap, especially the gastro docs and the stoma nurses. They helped me so much.
Good luck,
Betty
Advertisement
Hollister
In addition to your pouching system, you may require the use of an ostomy accessory to enhance the performance of your system.
Learn more about ostomy accessories, and when to use them.
Learn more about ostomy accessories, and when to use them.