Seeking One Piece Drainable Ostomy Bags with Convexity

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carebear422001
Jul 28, 2009 9:04 am
I'm needing some one piece drainable ostomy bags with convexity if anyone has any that the don't need. I've been wearing a convexity drainable pouch for years and now Arkansas Medicaid tells me that they will not pay for it anymore, well actually all of the companies around here have stopped taking Arkansas Medicaid because they won't pay enough for them to make money which I understand but what am I suppose to do? Arkansas Medicaid is all that I have and I won't qualify for medicare until I'm 62 years old, I've got awhile to go I'm only 41 at the time. From what I hear tho Medicare isn't much better about paying for ostomy supplies either but I'll worry about that later. I've had my illieostomy since 9/11/2001 because I had ulcerative colitis they thought turn out to be Chron's also and now I've developed a condition called gastroparesis where my stomach is paralyzed and can't digest food so I"m on tubefeedings 24/7 and nauseated 24/7 just like being pregnant. I'm so tired of fighting with these companies and getting nowhere fast. I asked one today if I got a letter stating why I needed the convexity pouch if they would provide it and I was told no so I'm desperately looking for somewhere to get some pouches that I can wear. Because I have Medicaid I don't think ostogroup will help me but I'm going to contact them anyway. If you've read this far thanks for listening, I just needed to come to a place where I knew I would be understood.

Tina aka carebear422001
sweede
Jul 28, 2009 10:52 am
Hi Tina,

If it doesn't rain, it pours, huh? No worries, lass, I think I may be able to help you out for just now. My name is Steve and I run a foundation for ostomates http://www.thelifegoesonfoundation.org.uk/ which, amongst other things, sends donated ostomy supplies to disadvantaged ostomates throughout the world.

Question: What size is your stoma?

I have recently moved all the stoma supplies into a new shed/office in the garden and most of the supplies are unsorted in shipping cartons, but what I do have to hand right now, for they have just been donated only yesterday, is 60 Salts Confidence Gold Convex drainable pouches, http://www.saltsstomacare.co.uk/products/ileostomy/1-piece-drainable/confidence-gold-convex-soft-and-secure.aspx The only thing is that they are factory pre-cut to 35mm, so if your stoma is 35 mm or larger, I can pop all 60 into a jiffy bag and mail them over to you courtesy of the foundation. They also have a built-in clip instead of the Velcro you see in the link.

Is that any good to you, lass?

If so, then they are yours. If not, I'm sure I have other convex drainable pouches kicking around; it will just take a few days to go through the pallets I have.

Oh, by the way! I also have about another 80 pouches, same make and style, except they are pre-cut to 38mm and have 2 plastic tabs at 3 o'clock and 9 o'clock to attach a stoma belt too, also with a built-in clip. Are they any good to you?

*Update*

A half-ton pallet arrived this morning. On exploring, I discovered that there are quite a few makes and sizes of one-piece drainable convex pouches that have arrived; most, but not all, are pre-cut to different sizes. So, if you give me your stoma size and the make that you used to get, then I'll see if I have the exact ones you need. If not, I will mail you some that have similar flexibility/shape/style if possible.



Anyway, Tina, get back to me, lass.


P.S. I think I may have sent you an email earlier; did you get it?
Posted by: ejbetty

Geekyjen,

Thanks for the reply.  I will be seeing my doctor on Friday and mention Entyvio.  I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared.  The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade.  Turns out I have been diagnosed with LUPUS. It is attacking my nervous system.  I had ulcerative colitis in 1996 and they had to remove my colon.  Had a J pouch for 10 years, until it started failing.  I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently.  I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared.  I have had two hospital stays now because of the blisters and the paralyzing incident.  I will be dealing with this forever now.  I have just been working on acceptance.

I love this website because of wonderful people like you!

 

Betty

weewee
Jul 29, 2009 5:03 pm
i was told to also call all the company's the give out supplies also they have programs that can help you and you can also right to your Governor and tell them what medicaid has done send a note from the doctor says you need these and don't stop writing he will get tried of your letters and good luck
weewee
Jul 29, 2009 10:45 pm
i am sorry i forgot all about the get together in new Orleans
the UOAA conference in New Orleans in early August. contact the uoaa and ask how long its going to be
where i don't know
angie.h
Jul 31, 2009 8:33 am
Hi there,

I know i'm from another country but the company i use i think are worldwide there called fittleworth .... www.fittleworth.com

good luck.  Angie
 

My Ostomy Journey: LeeAnne | Hollister

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