Struggling With Pressure Sores From Ileostomy Bag

brandyto81

Sep 08, 2009 4:51 am

Hi,
  I am trying to find some help.  I keep getting pressure sores around almost where the bag stops indenting.  I dont know what bags to try.  I have seen a stoma nurse several times and she keeps having me use bags with no convexity to them and they fall off immediately.  I wear a coloplast with a belt that has the convex to it.  I may be all confused on my wording.  She tells me I need a softer bag.  My stoma dont stay the same, sometimes it sticks way out and sometimes it is flesh with my skin.  I guess I just need to find somewhere to get a bunch of free samples to try and get one that will work correctly.  I have had an ileostomy since 99.  I recently lost weight so that is why I think I am getting the pressure sores but just dont know how to fix them.
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  Also I guess I just wanted to vent.  Well anyone with some ideas help me out please.
My name is BRANDY
I turned 28 Yesterday 9-6
CD since 14 only 8ft of small bowel left nothing else
have port in my chest for fluids everyday.

O K O K I babbled enough for now thanks
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Um I lied is there anyway to speak to people by email or phone?  I know it says it will delete your contact info so I was just wondering.

Past Member

Sep 08, 2009 11:04 am

hey welcome on your first post. you might want to post this same question on the "ostomy related" section of this forum...here`s the link https://www.meetanostomate.org/discussion-forum/viewforum.php?f=18

i would suggest you google convatec and hollister{located in your state even} and talk to their customer service reps....they will send you some samples of different types to try.
be sure to request a few of the "eakin rings" from both of them. i belive they might give more holding power to the flat type base. good luck and god bless

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This site is a godsend. As a newbie (colostomy on Nov 8, '21), I look at it every day for a number of reasons. Reading what people are going through makes me grateful that my elective surgery because of a severe case of IBS-C is nothing compared to what they have been through and are still living with.

I don't have to go to the hospital for anything related to my ostomy. I feel sorry for those who do and am in awe of those who can use humor to describe their ordeal. I identify with those who express their fears. I especially identify with those who are depressed because I am clinically depressed and have general anxiety disorder. How ironic that having a colostomy eliminated some of the depression and anxiety that the IBS created. I've been widowed twice and I'm on match.com.
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And there is much humor on this site and it's one of the reasons I enjoy it so much.

I could name numerous things I've learned from reading people's comments/questions/answers.

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It's not that I don't like these people; I do. It's that I think it elicits some "Facebook"-like banter or comments that are gratuitous.

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Meetanostomate is in no way negative. I just think the gallery of "popularity" detracts from what is an excellent website that deals with a serious issue that causes a myriad of emotions.

facingmyfears

Sep 08, 2009 12:33 pm

Hi Brandy,

First and foremost, HAPPY BIRTHDAY!!!!!!!!!!!!!!!!!!!!!!!!

I've only had my iliostomy for a little over a month but I do understand the frustion of finding a 'fit'.
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I will tell you that, just as our very kind and helpful friend, mild_mannered_super_hero suggested, the vendor customer services reps can be ever so helpful and they are more than happy to send samples and talk you through the process of finding the right 'fit'.  Honestly, if you find the right rep, he/she will laugh and cry with you. They've heard it all!

o.k. let's see if this gets through the administration screening: I use Edgepark Medical Supplies (www.edgepark.com) .... ask for x3513, Mark...he's an angel.

Good luck, sweet girl!   You'll find your path, and we will be here to help you!

Sharon

Ostomy Accessories – When And How To Use Them

Hollister

In addition to your pouching system, you may require the use of an ostomy accessory to enhance the performance of your system.

Learn more about ostomy accessories, and when to use them.

Past Member

Sep 09, 2009 6:12 am

Hi Brandy! Happy Birthday sweetie!
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... and I'm so glad you're here with us! I'm so sorry about all the trouble you're going through, this breaks my heart....so many of us understand some of the grief you're having dear. Mild_mannered and FacingMyFears gave you excellent advice, I do hope you make those phone calls...good luck!! Keep us posted on how you're doing.

~Much love from your Wounded Doe

Struggling with Pressure Sores from Ileostomy Bag