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Sep 08, 2009

Struggling with Pressure Sores from Ileostomy Bag

This topic is about dealing with pressure sores caused by an ileostomy bag and the search for a softer, better-fitting system. The person sharing their experience has had an ileostomy since 1999 and is now facing challenges after losing weight, which has led to painful pressure sores from the pouch pressing against their skin. Here are some helpful suggestions and insights:

1. The current setup involves using a Coloplast 2-piece system with a belt and convexity. However, non-convex appliances recommended by the stoma nurse tend to fall off quickly, while the convex ones stay on but cause pressure sores.

2. The stoma's length varies, sometimes protruding and sometimes flush, making it difficult to find a predictable fit.

3. It's a good idea to contact appliance manufacturers directly to request free samples and fitting assistance. Companies like Convatec and Hollister offer toll-free customer service and can send multiple sample pouches, wafers, and accessories. Be sure to ask for softer, flat, and light-convex options to find one that relieves pressure while maintaining a good seal.

4. Consider trying Eakin Cohesive Seals or Eakin rings from these manufacturers. Many users find that adding an Eakin ring improves adhesion for flat wafers without needing full convex pressure.

5. Using a full-service distributor can help coordinate samples from several brands. Edgepark Medical Supplies is recommended, with a specific representative known for being exceptionally helpful in matching products, arranging sample shipments, and providing ongoing support.

6. Posting the same question in the "Ostomy Related" forum section of the site can help reach a larger audience of fellow ostomates who might have additional product suggestions and tips.

7. It's important to keep communicating with other patients and vendor representatives. Many have successfully resolved similar fit and skin integrity issues through persistent sampling and minor adjustments to their equipment.
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