Just got my ileostomy yesterday. And oh my stars! It is noisy! I hate it! When air passes through it, it literally startles me because it's so loud! And it's so embarrassing! I don't see myself going out in public with this noisy thing... EVER! Does anyone have any tips/suggestions for sound-proofing???
Fay520
Mar 23, 2014 12:39 am
LadyHope
Mar 23, 2014 2:04 am
Hi Fay520,
Welcome to MeetAnOstomate. I am one year post-op and the noise does quiet down after a while. If my stoma starts to make noise, I blame it on being hungry. At work, I tell my coworkers that my stomach is growling...when is lunch....it really sounds like a growling belly. I am much more aware of the noise than anyone else. My husband usually does not hear anything at all. Once in a while I will say to him....did you hear that quack and he usually says no...what are you talking about. It is funny. The only time I have high vocal moments is when I am absolutely starving and I gulp down my food. Within a few minutes, the orchestra begins...the popping, rumbling, growling, whistling...it is amusing. At that point, I place my hand over my stoma to muffle the sound. It lasts for a few minutes and then it is over until the next time I devour my meal in a feeding frenzy.
Welcome to MeetAnOstomate. I am one year post-op and the noise does quiet down after a while. If my stoma starts to make noise, I blame it on being hungry. At work, I tell my coworkers that my stomach is growling...when is lunch....it really sounds like a growling belly. I am much more aware of the noise than anyone else. My husband usually does not hear anything at all. Once in a while I will say to him....did you hear that quack and he usually says no...what are you talking about. It is funny. The only time I have high vocal moments is when I am absolutely starving and I gulp down my food. Within a few minutes, the orchestra begins...the popping, rumbling, growling, whistling...it is amusing. At that point, I place my hand over my stoma to muffle the sound. It lasts for a few minutes and then it is over until the next time I devour my meal in a feeding frenzy.
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Posted by: Karen & Stella
Fay,
I am one of those few people who still have a lot of output at night. However, I suffer from short gut syndrome after seven bowel surgeries that led to the loss of much of my small intestine as well as my large intestine from the initial bowel cancer surgery. It does get better over time as your system adjusts, but an ileostomy can be a challenging adjustment. It's important to connect with a good Enterostomal Nurse - ET nurses who can help you problem-solve over time. It's been five years since my initial surgery, and I had a great visit with a new ET nurse in December. He really helped me with the problem of high output at night. I had been getting up every 90-120 minutes to empty my high output bag because of filling. If I slept for three hours without emptying, I would have problems. My ET nurse helped my husband and me make a nighttime collection system using a Rubbermaid juice container with a handle and my old CPAP hose. This is connected to one of my two-piece high output bags and allows for continual drainage. It isn't pretty, but it has been a real lifesaver. I guess the real message I want to share is to stick with it, find a nurse who you can work with, and together you will find solutions to whatever challenges you face. This website is also an important support for me and others. There is nothing you will go through that others haven't already faced and figured out. There is so much wisdom here. Read the materials they've put together for newbies. There are a lot of great suggestions to use. I hope things get better quickly for you.
Karen
I am one of those few people who still have a lot of output at night. However, I suffer from short gut syndrome after seven bowel surgeries that led to the loss of much of my small intestine as well as my large intestine from the initial bowel cancer surgery. It does get better over time as your system adjusts, but an ileostomy can be a challenging adjustment. It's important to connect with a good Enterostomal Nurse - ET nurses who can help you problem-solve over time. It's been five years since my initial surgery, and I had a great visit with a new ET nurse in December. He really helped me with the problem of high output at night. I had been getting up every 90-120 minutes to empty my high output bag because of filling. If I slept for three hours without emptying, I would have problems. My ET nurse helped my husband and me make a nighttime collection system using a Rubbermaid juice container with a handle and my old CPAP hose. This is connected to one of my two-piece high output bags and allows for continual drainage. It isn't pretty, but it has been a real lifesaver. I guess the real message I want to share is to stick with it, find a nurse who you can work with, and together you will find solutions to whatever challenges you face. This website is also an important support for me and others. There is nothing you will go through that others haven't already faced and figured out. There is so much wisdom here. Read the materials they've put together for newbies. There are a lot of great suggestions to use. I hope things get better quickly for you.
Karen
Jabid
Mar 23, 2014 2:50 am
Hi LadyHope,
I just wanted to say thank you so much for making me laugh with your very funny reply. My stoma is a very quiet one, but it gets naughty at times and LOLs when it gets too excited. Otherwise, I just have to put my hand over it to keep others from hearing it whispering.
I wish you both the best of health...
Regards
Jabid
I just wanted to say thank you so much for making me laugh with your very funny reply. My stoma is a very quiet one, but it gets naughty at times and LOLs when it gets too excited. Otherwise, I just have to put my hand over it to keep others from hearing it whispering.
I wish you both the best of health...
Regards
Jabid
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moonshine
Mar 24, 2014 2:43 am
What works for me is a diet of mostly protein. Limit any raw veggies as well... Think about how bread, pasta, and rice make a 'normal person' feel so bloated...
susanna
Mar 24, 2014 2:46 am
Your ileostomy will get quieter, I think. Mine has since I got it five months ago. It was noisiest for the first month and then has settled down and is pretty quiet most of the time. I bet yours will too. You can lightly rest your hand or arm over it so it will muffle the sound. I hope you will have a good recovery from your surgery.
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texazgal
Mar 28, 2014 1:51 pm
I haven't tried this, but a gal on another forum made a muffler for her noisemaker out of a foam ball. She bought a soft Nerf-type ball, tennis ball size, cut it in half and placed it over the stoma. Elastic underwear holds it in place and she swears it works. I do think yours will settle down later and as others have said, an arm or something will quieten it.
amaya1989
Apr 28, 2014 4:20 pm
Hi. This is completely normal, please do not panic!!.
My stoma finally shut up after 1-2 months. Everyone will tell you they never shut up, this is due to swelling and your body coping with everything it has just been through.
Now my stoma does it deliberately, I swear in front of people, but I only ever hear her maybe once a week when she decides to embarrass me. But trust me, they get a lot quieter and eventually it won't even sound like a bag!
Please don't worry, this is normal. It will settle, I promise.
I've had my stoma for 1 year, previously to that I had a stoma for 6 months.
deb54
Jul 06, 2014 9:11 pm
First, I cannot believe you just had an ileostomy and are already online....BRAVO! As for the noise, this is due to the recent surgery. I have had an ileostomy for 36 years, so I know what you mean. Your body has been through a lot and remember the small intestine is adjusting to its new role as both small intestine and colon. Trust me, it WILL get better as your body adapts.
I clearly remember the thing working constantly and the noise. I thought it would never stop and I didn't have a site to go to to ask questions back then.
All of the posts I see I got seem to be right on. Please don't get discouraged. You need to concentrate on resting and healing right now. Forget about the noise. One day you will realize it is hardly making any sound at all. Take care, Deb.