Hello everyone. I have an Indiana pouch and have experienced stoma pain from the very beginning, 6 months, mid October, 2013. 4 1/2 weeks ago, my doctor had to dialate because of stenosis. For about a week or so the catheterization was very good, except for the pain. Since then, the pain AND the cathing has become increasingly difficult. My doctor says everything is OK and I have to put up with the pain? I am not found anyone online that has any stoma pain but it very well may exist? Any and all comments will be greatly appreciated. Thank-You Louie
realdeal
Apr 21, 2014 2:28 pm
anyark
Apr 22, 2014 2:11 am
Hi,
Stomas do not have nerves, so something else is hurting. I would continue to ask the dr. what it is and why. If you can't get a satisfactory answer, perhaps you can see a different doctor.
with peace, anyark
Stomas do not have nerves, so something else is hurting. I would continue to ask the dr. what it is and why. If you can't get a satisfactory answer, perhaps you can see a different doctor.
with peace, anyark
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realdeal
Apr 24, 2014 12:59 am
Hi Anyark. Yes. I managed to get an appointment with a local doctor for this Friday, the 25th. Hopefully, I will have some clarification. Thank-You. Louie
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realdeal
May 18, 2014 12:28 am
Well guys. I had another dilation of the stoma and we left a catheter in for 15 days. The doctor said if this does not work he will have to do whatever to the stoma. 2 or 3 day stay in the hospital. Has anyone had to have this done? Also, when I mention the pain at the stoma, he said that may or may not clear up. Louie