This topic is about someone who has been experiencing ongoing pain and difficulties with catheterization after having an Indiana pouch created. An Indiana pouch is a type of urinary diversion that allows urine to be stored in a surgically created reservoir inside the body, which is then emptied through a stoma using a catheter. Here’s a summary of the situation and some advice shared:

- The individual has had the Indiana pouch for about six months and has been dealing with continuous pain at the stoma site since the surgery.
- A dilation procedure was performed to address stenosis, which temporarily improved catheterization but did not alleviate the pain.
- Over time, both the pain and the difficulty with catheterization have worsened.
- The surgeon has indicated that the pouch itself is functioning properly and suggested that the pain might just have to be tolerated, which prompted the individual to seek advice from others with similar experiences.

Additional steps and questions include:

1. An appointment has been scheduled with another local doctor to gain more insight into the cause of the pain.
2. A second dilation was performed, and a catheter was left in place for 15 days. The surgeon mentioned that if this does not resolve the issue, further surgical revision of the stoma might be necessary, which would involve a 2-3 day hospital stay. The individual is curious if others have undergone this procedure and if it helped with the pain.

Advice and insights offered:

- Since the stoma itself does not have nerves, the persistent pain is likely due to another underlying issue. It is important to continue discussing this with the current surgeon or seek a second opinion if the explanations provided are not satisfactory.