My daughter, age 10, is a recent ostomate (ileostomy). We have had a lot of trouble finding the best appliance for her due to size, activity level, and spotty home health nurse help. We're waiting for our first order of what we think is the best system, and meanwhile are making do with samples that the home health nurses can bring to us. The main problem is that they keep leaking at night/early morning while she is sleeping. We wake up to a nasty mess that requires 45 minutes of clean up, etc. The leaks seem to occur underneath the barrier seals that we're using, and mostly seem to occur when there is a lot of gas in the bag. I'd appreciate any tips longer-term ostomates have on how to prevent nighttime leaks. Do you avoid eating past a certain time? Do you wake during the night to empty/vent? Do you sleep at a slight incline? I am hoping the better products I've ordered will get us past this, but would also like some relief in the meantime.

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Caz67
Well it's just coming upto a year since I had my emergency stoma. Since joining MAOM I have learnt all different kinds of ideas to help with the stoma. Not only that I have made a lot of good friends who I can talk to. The beauty of this site is it's not just giving tips and ideas we talk about anything and everything. So thank you for giving us a great site. XX
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Hollister
We sat down with two influential people in the ostomy community, to find out how they cope during challenging times.
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Read what they had to say.
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Hollister
Ostomy surgery is stressful both for the patient and the caregiver, and creates a major life change for both people in a relationship.
Learn how to care for your loved one, while still taking care of yourself.
Learn how to care for your loved one, while still taking care of yourself.