Life After Bladder Removal Surgery

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tonysan
Oct 12, 2014 9:22 pm

There are so many organs in our body; all playing important roles to ensure that our body is functioning properly. Have you thought of life without a particular organ?

Well, just yesterday, I spoke to a 70 year old lady who was recently diagnosed with bladder cancer. She was to undergo a "cystectomy" this morning, in which she did. Cystectomy = removal of bladder. hmm..removing your bladder..it doesnt sound like a very nice thing to undergo. But I find it particularly interesting.

Therefore, I was at the theatre from 10am till 2.45pm today. The operation took so so long...now my feet is aching. But it was certainly an eye-opener. I was lucky to get a good view to observe the whole surgery. The surgeons were very kind to guide me through what they were doing, while pointing out the few organs in the abdomen.

I guess you must be wondering how the hell is this person goin to ever pass urine eh? Will that person ever feel the urge to pass urine ever again? The answer is NO. Without a bladder, there is no place to store urine.

Let me run you through the whole surgery. First, you have an incision in your abdomen. Then, your bladder will be taken out. If you're a female, then you'll most likely have both your ovaries and uterus removed together. The reason for this is because the surgery will usually cause some damage to these organs because they are closely connected. After that, a part of you intestines (terminal ileum) will be cut out, say about 7 cm in length. One end of this will be connected to your ureters (the tubes that carry urine from the kidneys to the bladder), while the other end will be connected to the side of your intestines (just so that it is fixed, and not moving about). Next, the opening of the cut-out intestine will be stitched to an opening in the abdominal skin, forming a "stoma". (hope you get the idea) So, once urine is produced, it will be carried by the ureters and move through the cut-out intestine, and through the stoma and finally, empty into a urine bag.

This urine bag will be attached to your body all the time..it serves as the new bladder. I have to say that carrying a bag of urine around is not fun at all. There is always a chance of urine leakage, the potential smell and the bag may protrude out from your clothes. Not to mention, your urine is warm and you'll always have this warm bag attached to your body...mmm...u know, it will be so weird. I really pity those who have to undergo such procedures. But this is the best option of getting rid of more extensive bladder cancer.
urogolfer
Oct 14, 2014 12:19 am

I had my bladder removed about a year ago.  Saved my life and certainly changed it.  I am back to playing golf and doing yard work.  The heat and sweating does cause some problems with leakage.  All you athletes out ther that in this situation, what products do you use to control the leakage and allow greater flexability?  

Posted by: freedancer

In both of my cases, I had no choice. It was surgery or be put 6 feet under! I thank God that He has been with me all these times. Without Him, I never would have known what to do and might not have gone to the hospital when I did. I don't know if you have had your surgery or not yet but I hope you will hang out on this website when you are done. I have learned a great deal through the people here and it is so great having others who have had the same thing done and been through what you are about to or have gone through. The only thing I have turned down is a reversal of the ileostomy. When the doctors did the emergency rebuilding of my original ileostomy this last February, I told them I did not want to go through this again. My doctor told me at that time that I was no longer a candidate for the reversal. In a way, I was very relieved. The last three years of my life have been a nightmare for me. I do not want to go through any of it again. If you wish to be rehooked up and they say you are a good choice for that, research it carefully. Every surgery I have ever had except for Old and New Maxine and the emergency surgery on my broken foot, I have spent weeks researching. I recently had my C5 C6 disk in my neck replaced with an artificial one. I went to my pre-op with 2 pages of questions for the doctor. I knew everything that they were going to do and could talk intelligently with them. I always try to research my adversaries! Don't cancel your surgery. It is nice not to have to suffer any longer with horrible pain. We all had to change a few things around when we had our surgeries but in the long run, most of us are glad we did it. I know I am. Good luck to you!

Claire59
Oct 14, 2014 10:45 pm

I am wondering how you (friend, relative?) were able to view this op.  Hope the lady is doing well.  I had this done 23 months ago at Memorial Sloan in NY with many bumps along the way.  But there is no choice when you have cancer.  Living with the urostomy bag is not so bad once you get used to changing, etc., which I have, and find the right system.

 

bluejewel
Oct 15, 2014 12:22 pm

Just wondering why you pity anyone who had a cystectomy? You are alive because of that surgery, and I am too. There is nothing to pity, but everything to celebrate that we live in this day and age where they have developed this surgery that helps us live longer and fuller lives. Attitude adjustment needed in your case.