I have have colorectal cancer and was operated on in June 2014. I had an ilestomy and am now facing the prospect of a reversal operation. They found microscopic cancer cells in two of the 18 lymph nodes that were taken out when they removed my tumour so I had 26 weeks of chemo which finished in March 2015. I have had two clear CT scans and good blood results so feel now is the time to think about a reversal. However, having got my life back, full time job, and being out and about I am worried about the restrictions a reversal may put on my life. Living with an ilestomy is not as bad as I thought, relatively easy really. Can anyone advise me on this issue as I am really nervous about it?
Many thanks
ABB
ABB
Jan 25, 2016 10:16 pm
Ewesful
Jan 28, 2016 1:40 am
I don't have a choice and have comfort with the ilieostomy but two others I know have had excellent luck with reversals - one has had cancer and the other FAP.
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Posted by: iMacG5
About seven years ago, just about every aspect of my life was ostomy related. From the moment I was told an ostomy might be needed until some months down the road I existed as a person afflicted with a colostomy. I feared someone other than my immediate family might find out I had a bag. Ugh! What could be worse? Suppose it filled real fast when I was out with no place to hide and take care of myself. God forbid should it leak in church! Suppose I roll over on it in bed. I was a lesser creature, destined to a life of emotional anguish and physical routines different from most of the rest of the world. I felt like a freak. Then I found folks like you guys here, read your stuff, really “listened” to what you had to say and I began looking at things differently. We know perception is everything and I began to understand how good things were relative to what they could’ve been. So many folks had it so much worse than I did. That didn’t make my discomfort go away but it exposed how fortunate I was to be dealing with my stuff and not their’s. I felt a little guilt, maybe selfishness but quickly forgave myself by understanding I just wasn’t smart enough to fix my feelings. Then, I wonder what smarts have to do with feelings. My perception was warped so my perspective toward my existence was warped.
I learned over the last few years with the help of lots of folks right here at MAO that I could be better at living just by accepting some facts. It is what it is and so what? It’s not the worst thing to happen to a person.
I think everything is, in some way, related to everything else. I just put the ostomy thing in the back seat and drive forward.
Respectfully,
Mike
LadyHope
Feb 02, 2016 2:25 am
Hi ABB, Thanks for your post. I believe it depends on the type of surgery and what part of the intestine is being reversed. I have heard both positive and negative comments regarding a reversal. I can't have one - my ostomy is perm. You may want to google questions as well. What did your doctor say? Will you have good control over your bms. Control is important because you do not want to worry about accidents and being near a bathroom the rest of your life. A good friend of my family had color CA, had a colostomy and reversed 9 months later. She was fine with some constipation at times that was controlled with meds. Research the topic and ask your surgeon/internist lots of questions. It is important that you know all of the possibilities. Take care and good luck to you. LH.
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Newbie Dana
Feb 03, 2016 4:27 am
I had colo-rectal cancer with a resection, radiation and chemo. No more cancer, but lots of side effects from the treatment, including long-term chronic diarrhea for nearly 4 years. 4 years later, I had a perforated colon, peritonitis, and very long-term antibiotic treatment after finally getting a (hopefully) reversible colostomy - at which time the diarrhea went away! Go figure. Like you, ABB, I was at first very gung-ho for a reversal as soon as possible, even though I had been told ball-park 6 mos to a year, if ever. Like you, I finally got straight and got my life back, and I am really not in such a hurry any more. I am actually feeling better now than I have in 2 years! I believe I will continue to improve, and I'm not yet ready to undergo that major surgery just for the sake of not fooling with the bags.
So what will I think in a year when it may become possible to reverse it? Who knows, at this point. I guess it will depend on 30 gazillion other factors at that time!
Stories of Living Life to the Fullest from Ostomy Advocates I Hollister
