Seeking Advice on Colostomy Reversal and Recovery

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VeganMidiMan
Apr 18, 2016 5:34 pm

Had a colostomy 5 months ago due to grade 3 sigmoidocele causing complete elimination obstruction. Sigmoid was removed, but the rest of the colon remains. Resection was not done at the time due to severe malnutrition.   I have had ZERO quality of life since then, although it is outputting  fine, this pouch and maintaining it  & the stoma has completely taken over everything I do, along with the near constant discomfort of wearing this pouch. I cannot live like this! Doc seems anxious and enthusiastic (almost too much so)   to do a reversal. Have gotten a 2nd opinion which agrees with that of my surgeon, for the most part.  All I'm hearing is the negative possibilities, neither doc has really given me anything positive to hold on to, but perhaps they are just trying to keep my expectations in check.  I want to get rid of this bag and return to a normal life, but . .  will that happen?  I must have it done IN JUNE to allow recovery time prior to my seasonal business kicking in , so I must make a decision on this quickly in order to schedule the procedure.  

What am I in for? How long in the hospital?  How might my condition be during the transition? Will my life return to 'normal' as in when my digestion was working normally?   I have NO HELP at home, I live alone, will I be able to handle the recovery?  I need as much guidance as you all are kind enough to provide. I am terrified of doing this, but more terrified of living another year, or even the rest of my life as I am. 

 

I am meeting with my surgeon again tomorrow (4/19) to hopefully get more details, but I need to be sure I'm getting the right info and asking the right questions.  Thank you !

iMacG5
Apr 18, 2016 8:27 pm
Very helpful

Hi VMM. When the surgeon mentioned the possibility of a colostomy, my reply was "That's not an option." That was about 4-1/2 years ago. My original surgery included a resection, but spending my life in the bathroom wasn't working for me. So, I have the bag now, and it's been about 6 years since any sign of cancer. I don't like all the stuff that goes into being an ostomate, and I don't have any idea about the possibilities of a successful reversal for you. I would, however, allow myself to completely heal physically before another surgery. I would also suggest doing whatever it takes to accept where you are, think about it, talk about it with the right folks, and make the best of every day you have. The worst-case scenario would be you living to be a hundred or so, being pissed every day because you poop differently.

Respectfully wish you the best,

Mike

Posted by: iMacG5

About seven years ago, just about every aspect of my life was ostomy related. From the moment I was told an ostomy might be needed until some months down the road I existed as a person afflicted with a colostomy. I feared someone other than my immediate family might find out I had a bag. Ugh! What could be worse? Suppose it filled real fast when I was out with no place to hide and take care of myself. God forbid should it leak in church! Suppose I roll over on it in bed. I was a lesser creature, destined to a life of emotional anguish and physical routines different from most of the rest of the world. I felt like a freak. Then I found folks like you guys here, read your stuff, really “listened” to what you had to say and I began looking at things differently. We know perception is everything and I began to understand how good things were relative to what they could’ve been. So many folks had it so much worse than I did. That didn’t make my discomfort go away but it exposed how fortunate I was to be dealing with my stuff and not their’s. I felt a little guilt, maybe selfishness but quickly forgave myself by understanding I just wasn’t smart enough to fix my feelings. Then, I wonder what smarts have to do with feelings. My perception was warped so my perspective toward my existence was warped.
I learned over the last few years with the help of lots of folks right here at MAO that I could be better at living just by accepting some facts. It is what it is and so what? It’s not the worst thing to happen to a person.
I think everything is, in some way, related to everything else. I just put the ostomy thing in the back seat and drive forward.
Respectfully,
Mike