Hey Lavern, somehow I missed your Aug 2 reply. There's also a product named "Stop Plus" that's a good deodorizer. Hollister's "Adapt Lubricating Deodorant" didn't seem to work as well and I don't think Ileostomates need lubricants.
Please let us know how you're doing.
HarleyDoll, you can call NU HOPE for the hernia belt information at 1-855-527-8639.
Mike
Pooey on that! Change as you need to, in order to make yourself comfortable!
Change BEFORE the pain, BEFORE the leaks. Your ostomy nurse sounds like a woman who can handle self-deprivation and weather-out pain. Good for her! The rest of us, however, have no desire or need to do so. We'll change BEFORE we have leaks or pain, thank you! And YOU. KBD, need to join us in taking care of ourselves, and to heck with your crabby ostomy-nurse-who-doesn't-get-it. Change as often works best for you so you are comfortable and never have to feel pain or discomfort. At all.
I found out the maximum bags allowed by my insurance, and kept them coming. Once I decided that it was best for me to change daily, I was happy to have a steady and large supply coming in.
This is a remarkable community of 40,871 members.
You will get real advice from fellow ostomates who truly understand you - things you won't find in the books.
And it's not all about ostomy - there is friendship and relationships too.
Privacy is very important - your profile is not visible to the outside world.
Marjatta
This group has been my go-to during my loneliest hours whenever I've had a "bag blowout" at 3am and there was no one else in the world to talk to.
Because it's a global community, there's always someone here to lend an ear, provide advice, and just hold my hand if that's all I need.
Sure, there's also a lot of camaraderie, fun topics, and laughs, but the main reason I come here is for the total acceptance I get from the members. No one else on the planet could possibly "get" what I'm going through, not even my loving husband or supportive family.
The "Meet an Ostomate" forum is definitely a one-of-a-kind family, which I am very proud to belong to.
M
xo