Need Info on Laparoscopic Ileostomy Pouch Form + Proctectomy/ Panproctocolectomy

Sep 18, 2016 3:25 pm

Hi everyone,

I am new here. I have had UC for 12 years now, though 6 of them have been in remission. On a routine colonoscopy, low-grade dysplasia was found. After 6 months, it was decided I needed to have a 'laparoscopic ileostomy pouch form + proctectomy/panproctocolectomy' (quoted from letter). If anyone can shed any light on what that actually means, I will be very grateful. I'm under the impression I'm having everything removed with a temp ileostomy so I can have the reversal at any date. I have my pre-op tomorrow, so will ask lots of questions there too. I'm just looking for info on what it's like pre and post-op. I have spoken to lots of people who have also had it done, but most have had a bad recovery or complications. Has anyone had a good experience? xx

Sep 18, 2016 8:19 pm

Hello Katerina. Thanks for your post and i hope you get lots of replies from people who have had good outcomes. Whenever I get medical terms sent ot me in letters I immediately Google it to see if I can get a more coherent, yet expert explanation.

Don't be put off by the many problems people write about because many people dont' have any problems at all - so they don't feel the need to seek help and support by posting on the internet.

I have been reading posts for some time now and there are lots of people who come out of these operations with a much more positive experience than when they went in. It is a steep learning curve and I can only hope that yours will eventually turn out to be positive for you

Best wishes

and good luck


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Sep 19, 2016 6:44 am

Thank you, Bill, for your reply. I look forward to hearing more xx

Sep 21, 2016 10:22 pm

Bill is right on about the comments. I wish you the best and take notes to read afterwards -- you will be so happy and you may not even want a reversal!

Keep us posted and prayers are offered for you. :)

Sep 22, 2016 1:14 am

Thanks. Had my surgery. 5.5 hours and finished at 3.30 pm. I must be really dosed up and I can't feel much pain, just a bad back! Thanks guys xxx

Stories of Living Life to the Fullest from Ostomy Advocates I Hollister
Sep 24, 2016 7:26 am

Hello Katerina.  I hope everything went well. When you feel a bit better I hope you will let us know that it was successful.

Best wishes


Sep 24, 2016 7:52 am

Hi Bill. Everything went well, thanks, and to plan with Keyhole. I can't get comfortable at night, so I end up with a bad back all day. The pain today is probably the worst it's been since Wednesday, so I'm taking paracetamol, tramadol, and ibuprofen. Xx

Sep 25, 2016 5:48 am

Hello Katarina. Thanks for coming back to us.

Like all post-op periods, it will take some time to settle down. It sounds as if everything will be fine in time so don't forget to let us know when everything is back to normal as it is important for people to hear about the good stuff as well as all the problems.

Best wishes


Sep 27, 2016 6:54 pm

Hi everyone. I am home today, 6 days post-op. Very tired and not much energy. I also have a urinary infection so it's taking it out of me! Xz

Sep 27, 2016 8:46 pm

Welcome back. I consider it a new beginning. A new life you got. You will get back to normal after removing stitches. I have been through this when I made the reversal and failed, and then went back again to the pouch.

Sep 29, 2016 6:12 am

Hello Katarina.

Tiredness is understandable after an operation and often people have infections because the process makes them much more vulnerable. However, this is a phase that soon passes and I hope that you make a full recovery soon.

Best wishes


Past Member
Sep 29, 2016 1:14 pm

Hi, hope you're okay. I had a bad back for a while after and very weak, but strength soon came back. I'm going through a bad patch at the minute, but still glad I got the operation. Keep fighting!

Oct 01, 2016 3:20 am

Take one day at a time, our bodies take their time healing so everything will come in due time. Hope you're feeling better today, we're thinking of you and sending good thoughts and prayers your way!