Hi,
I'm new to this site and would appreciate some advice from people who have had ileostomy surgery. I would like to know anything that might help me before my operation. Is it extremely painful? Should I stop eating beforehand? How long is the average hospital stay? I would be grateful for any information.
Thank you and I appreciate you taking the time to read this and reply.
Hello and welcome. I have a permanent colostomy, so I don't know if I can answer your questions. Just to let you know, however, I was in the hospital for 7 days. Yes, it was painful, but the pain medication helped. Sitting was difficult because I had to have everything removed and my bottom was stitched up. Walking, I am sure they will insist that you walk as soon as one day after surgery. I had several complications, but it is different for everyone. I am sure that you will get your responses soon. I had my surgery five months ago.
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About seven years ago, just about every aspect of my life was ostomy related. From the moment I was told an ostomy might be needed until some months down the road I existed as a person afflicted with a colostomy. I feared someone other than my immediate family might find out I had a bag. Ugh! What could be worse? Suppose it filled real fast when I was out with no place to hide and take care of myself. God forbid should it leak in church! Suppose I roll over on it in bed. I was a lesser creature, destined to a life of emotional anguish and physical routines different from most of the rest of the world. I felt like a freak. Then I found folks like you guys here, read your stuff, really “listened” to what you had to say and I began looking at things differently. We know perception is everything and I began to understand how good things were relative to what they could’ve been. So many folks had it so much worse than I did. That didn’t make my discomfort go away but it exposed how fortunate I was to be dealing with my stuff and not their’s. I felt a little guilt, maybe selfishness but quickly forgave myself by understanding I just wasn’t smart enough to fix my feelings. Then, I wonder what smarts have to do with feelings. My perception was warped so my perspective toward my existence was warped.
I learned over the last few years with the help of lots of folks right here at MAO that I could be better at living just by accepting some facts. It is what it is and so what? It’s not the worst thing to happen to a person.
I think everything is, in some way, related to everything else. I just put the ostomy thing in the back seat and drive forward.
Respectfully,
Mike
Hell Maz. Welcome to the site.
As with Bettyjoe, I have a colostomy so it is slightly different. However, as a general rule, surgery of any kind can be painful but they have drugs to counter this and people are up and about in no time. If I recall correctly, they were waiting until I passed urine and stools without the aid of catheters, before they would consider me going home. The consultant also seemed to be assessing whether or not I would be 'sensible' in looking after myself if he let me home. There were no complications in my case so I was home in about 5 days. Everyone is different in this regard.
As for pre-operation preparation, they should give you all the information necessary. I believe it is normal practice not to eat the day before and they gave me an enema to clear me out.
If you are worried, ask your doctor or nurse for the leaflets on pre-op. preparation, which I found quite helful because I could read them in my own time, as many times as was necessary to understand them. It is difficult not to worry about these things but there is little point in doing so before the actual outcomes are known. It is true that a few people have complications but these are not usually anything that cannot be fixed and most people sail through it with no complications at all.
Let's hope you are one of those
best wishes
Bill
Maz,
I've had a permanent ileostomy for almost 22 years now. I'll try to recall my experience pre and post surgery, but as Bill said, it's different for everyone.
The day before my surgery, I had to do a prep like you would for a colonoscopy to clear my system. I think that was the worst part to be honest. Clear liquid diet but your health professional will guide you on that.
A normal ileostomy surgery with no issues will probably get you out of the hospital in 5-7 days. When I woke up, I had a tube in my nose, down my throat so they could flush my stomach. I wasn't allowed to have anything but ice chips the first few days but then they let you have clear liquid and/or soft surgical foods.
The doctor wanted me up and walking around as soon as possible. I wasn't in pain but I was sore. The air that they put in your body during surgery has to dissipate through your skin and it takes a week or 2. I felt hunched over and was scared I was going to rip my stitches out.
Oh, the doctor told me the sooner I was off of pain medication, the sooner I could go home so I had them take the morphine drip off right away. I wanted out of there. But I was careful and didn't overdo it.
So my advice to a person having ileostomy surgery is this:
Hope my 2 cents worth helps. But please let us know if you have any other questions.
Bain
Thank you all so much for your replies. Bain, your information has been really helpful. It's difficult talking to family as they are worried enough about me, so I keep my thoughts to myself. I am looking forward to gaining my life back. I know it's silly, but I'm just anxious about how I will manage at first. I'm happy I can come on this site and chat with people who have been through this.
All the information I get from real experiences will help me through this.
Once again, thank you for your replies.
Maz
Hi Maz
I'm in the UK and I had a permanent ileostomy last year in Watford General.
To add to the good advice above
There is no need to worry. It's more scary than painful and pain control should be complete.
Length of stay? - depends on many factors so I wouldn't like to guess but the good old NHS will get you out ASAP.
So Good Luck and let us know when you have escaped ; (feel free to PM me if you like)
Nick