Hello, it's me again... I hope and pray everyone is well. I have a family member, my father to be exact, that really doesn't understand the highs and lows of day-to-day function. I went to a barbecue on the Fourth of July and had an accident. I was discreet about it... My family had another barbecue today and I chose not to go. It's at a park with bathrooms close by. My father thinks I'm making it more than what it is. The backing of my two-piece did not stick, so I had to clean up in the car. How do I get him to understand, or will he ever understand? I don't always feel my best. I thought after the surgery I was going to feel a lot better, but I don't always. I still deal with bad constipation and now, since the surgery, I can feel it even more if I don't empty every day. I saw the doctor on Thursday, so now I take 400 twice a day. Do any of you still deal with the same issues after surgery?
Hello drfields24.
It sounds as if you have enough to deal with, without worrying about what your father thinks. If you read enough of the posts on this site you will come to realise that most people who have not experienced the problems of stamas first-hand, don't have a clue as to the sorts of things you have to put up with and manage. When confronted with the problems of the stoma and of the unintended, ill informed ignorance of other people, we need to make decisions that suit us, rather than try to cater for the presumptions and assumptions of onlookers.
Best wishes
Bill
MeetAnOstoMate is a remarkable community of 41,453 members.
“Every morning with my coffee, I read here and feel wrapped in warmth - I hardly post, but it still feels like family.”
“Our oncologist literally wrote down the link; they said more patients need this website.”
“This place pulled me out of the dark. I went from lurking to living again.”
“At 3am, someone’s awake somewhere in the world. I’m never alone here.”
I want to thank everyone for their suggestions, messages, and tips! So many have helped! We are learning as we go, learning the ins and outs of this bag. I have ordered special tape that does not irritate my skin and am now using Domeboro powder before putting on a new bag. My boyfriend says that my skin is so much less red!
Saw an ostomy nurse today; she said my boyfriend is doing everything right. One of my issues is that I am really thin, and my skin is really crinkly due to the surgery. We shall see how this bag goes.
This site is a real blessing. Everyone here is so awesome!
Kim
I spoke to my doctor about irrigation..... I'm getting ready to start school full time soon and he feels it would be more trouble than it's worth. He said to see how rigorous my schedule would be like because he says I may not be able to irrigate when I need to which would cause even more problems. Anybody in school full time?
Learn about the physical and emotional benefits of using ostomy accessories.
Hello drfields24.
When I first started to irrigate, I calculated that I was spending more time dealing with my stoma (in small sections of time during the day) than when I allocated the hour or so at the end of the day to irrigate. The convenience of irrigation allows me to work (more than full-time) without having to worry about output at all.
I hope thids helps in your decision making.
Best wishes
Bill
My Ostomy Journey: Keyla | Hollister
I don't know about irrigation, as I don't do it, but I do carry a small pouch with everything I need for any kind of emergency, from pouches and disposal bags to everything I need to change a faceplate - including template, marker, and scissors, some wet wipes in a zip-lock bag, and even band-aids (those scissors are sharp). If no bathroom available, some handy bushes will suffice. Having raised two kids, and dealing with innumerable nieces and nephews, I know about having to deal with accidents. This is really just another accident to deal with matter-of-factly, and don't let it get you down or slow you down.
Being in class and an irregular schedule may make you think about irrigation, but I would wait until you had a break from classes to start, because I understand it may take a bit of time for your body to get accustomed to it, and you want to be able to control your life while you are getting that under control.
Good luck!