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Jul 08, 2017

Dealing with Post-Surgery Challenges - Seeking Advice on Ostomy Issues

This topic is about dealing with the challenges that come after ostomy surgery and finding ways to help family members understand what living with a stoma is really like. The person sharing their experience had a difficult moment when their ostomy pouch failed during a Fourth-of-July barbecue, leading to anxiety about future accidents and a lack of understanding from their father. They also face ongoing issues like severe constipation and a feeling of fullness, even after surgery. Here are some pieces of advice and insights that might help:

1. It's common for people who haven't experienced life with an ostomy to not fully understand it. Focus on what makes you feel comfortable and safe, rather than trying to meet others' expectations.

2. Colostomy irrigation can be a time-saver. Some people find that dedicating about an hour at the end of the day to this process can help eliminate worries about output during the day. It might be worth considering once your schedule becomes more predictable.

3. Always have an emergency kit with you. This should include spare pouches, disposal bags, supplies for changing the faceplate (like a template, marker, and scissors), wet wipes in a zip-lock bag, and band-aids. If a restroom isn't available, look for discreet outdoor spots. Treating accidents as a normal part of life can help reduce stress.

4. If you're thinking about trying irrigation, it might be best to start during a school break or a time when you have less pressure. This way, your body can adjust without interfering with your classes.
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