I am pretty sure there are many of you who have had problems with gas (or wind, as my European friends call it). I am having a horrible time with this and need suggestions. Gasex and peppermint tea are not helping and my normal medication regime that I have set up for this is also not working. I know that I am not blocked as my stoma is releasing fluid but it seems like the horrible gas that rolls around from one side to the other is not escaping. I am, at times, literally bent over in severe pain. I ended up having to take one of my heavy hitter pain meds last night to be able to get some rest. Do any of you have any methods to address this? I am becoming very frustrated and depressed about all of this. Can high stress cause this sort of reaction? It seems to have acted up really bad during these holidays. I didn't think I was stressed out but I did have my sister-in-law here for 5 days and her schedule is completely different from ours. Please, please, if you have a solution for me, please let me know. This pain and gas are wearing me out physically and mentally. Thank you.
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Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
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