Hi is there anyone out there who would like to talk to me, as I have a stoma and I have only had it for 2 years.
BayGal
Apr 05, 2018 12:54 pm
Mrs.A
Apr 10, 2018 2:16 am
Baygal,
Have you tried the chatroom. It's a good place to talk. When we log into the site we show up in the chat automatically, but not all the time do most of us chat because we might be answering posts. If you write something in the chat we can usually hear a tone to alert us someone is there. Try it. I don't get there to often, sometimes on Wednesdays and Sundays. Hope to see you there.
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty